I got my diagnosis taken away again.
So I’ve had POTS my entire life, but it got really bad about 4 years ago. I was diagnosed 3 years ago by a neurologist, but after he transferred to a different state his assistant took away my diagnosis and said it was seizures. Later my primary doctor told me that there was no way it wasn’t POTS and that it was crazy the neurologist said any different. This was about 2 years ago now. This past March I went to the University of Utah Neurology center to run some tests and see if they had any ideas on how to help me improve my quality of life. Instead, they said that I likely didn’t have POTS. I’m so frustrated that my diagnosis keeps getting taken away. I wouldn’t care if they at least told me how to improve my health, but they said I had orthostatic intolerance and left it at that. I’m just so tired of this whole situation and wish someone could just give me a straight answer as to what exactly is wrong with me.