Not pain.Just frustration
[31M] I've had HS for awhile...Can't really remember when it started or even when I was diagnosed (but i was).And honestly I had bad anger issues before this condition became fatal or more complex to deal with...When I first got flare ups or bumps I really thought they would come and go...my trigger was pork....and I LOVED ham...so when I would get flare ups, I would use hot compresses and pop them within days....Not until I got a lump on the back of my neck...it was THE most annoying thing ever....I mean I couldn't turn,look up or down...it was almost like Micheal Keaton playing batman...of course i got it dealt with...and I had stuffing or filling put in my neck after they cut me open.....so as life goes on im still unaware of all the other possible triggers for HS...Like smoking tobacco, dairy and sugars...obviously those are bad options in general, but I mean cmon the next guy smokes all his stress away and he's handling motor vehicles...so I thought I was in the clear...no.....the Dr never told me about possible triggers either..they didn't know I had the condition...Neither did I...so I started getting them everywhere....groin ,armpits ,my neck swelled again...I mean people I was a wreck...(sorry to not mention my age process,but I really cant remember like what specific age I was...all I knew is that I was in pain and I wanted it to stop)...buuuutt I was put on bed rest after losing my job,due to my lack of performance on the job....i was working my ass off....I had a family to take care of....and nothing was gonna stop me....but it eventually did...after multiple visits to the hospital...I was prescribed many things...antibiotics and painkillers...(not really gonna be specific) ,but i was on bed rest from February to November in 2023..I had help from a good friend who found me a good dermatologist...and they prescribed me steroids.....and man.....did those bad boys help....I was finally able to get off my back....no longer did I need to soak in the tub for hours of the day...I can play with my children a bit more and help my loving loyal wife....I felt so miserable being in bed.....on top of the prescription I was taken 10 or more Ibuprofen a day or aleve just to get rid of the pain......I should be dead honestly....but once I got off bed rest I wasn't complete.. I was able to move ,but barely..I still soaked,Sometimes with Epsom salt to relax my muscles...and honestly I was grateful for the experience...while in bed I couldn't do shit..yes I was angry as fuck,but I was in control of it ...I couldn't let my children see an angry man in pain.. I had to smile for them...and for that I learned patience....something i needed more the painkillers....Till this day i still suffer from it but its calmed down soooooo much....and honestly I haven't really been to any specialist....I just been living....working and dealing with it as I move foward with my family....I do plan on going to dermatologist pretty soon ,but in the time of this unfortunate circumstance,I can't really afford a visit to get better....but as I am now I can still provide and live for my family till the appropriate time for me to get seen arrives...
I would never wish this on my worst enemies...lol if I had anyway...but I thought nobody would understand what I was going through....the pain.....the tears.....the embarrassment......the stench....the uncomfortableness....the hiding.......the explaining......the SCARS......THE PAIN.........But i was selfish and didn't want to believe that others could possibly feel this way too.....and for that I sincerely apologize.....For all that are going through,been managing, or just know finding out....HS IS A BITCH.....but we are dealing with this bitch together...God loves you and I do i as well...✌️