r/Hidradenitis

For 8 years, I have gotten very painful ingrowns in my groin area- only in areas where my underwear sits/ causes friction.

It starts with a hard painful lump that gets inflamed, will pus- and if I pick it or try get the hair out…transform into this insane blood boil. Once it finally goes away, I am left with this thin skinned crater hole scar- and you can literally still see the hairs growing underneath. I’ve learnt to leave them alone unless a hair is actually poking out.

I have gone to the doctors countless times over the years, tried a range of topical creams, antibiotics, or acne medication with no relief. Eventually I was told the only option was laser hair removal- which I have been getting for almost two years.

Despite my hair thinning significantly, It has not worked and I am still constantly getting them, one will come for months, leave, and a week later another starts. I went back to the doctor and asked for a referral to the dermatologist, I literally got laughed away and told it wasn’t bad enough for a referral. I continued pushing and she flat out refused.

I currently have had an inch long (seriously) painful hard cyst in my groin for 4-5 weeks. I can see pus under the skin and I have been trying to treat it with antiseptic for 2 weeks when it came to a head. But it hasn’t gone down.

Does anyone have any advice at all in getting this treated/ products I can use to calm it? Even diet or routine advice? I’m weary to pay another $70 fee to be laughed at again. Having dealt with this for many years I feel pretty defeated and I just want it to F OFF!!!!

Edit - I have PCOS as well

Is anyone here in the Rinvoq clinical trials? I went and saw my derm last week and we were discussing future options. She told me Rinvoq is in stage 3 of the trials and I’m really curious to know if anyone’s on it and if it’s working?

I’m a trans masc (32) individual who has been on topical gel testosterone for 6 months now.
Pre T I had very mild acne flare ups on my chest/back, more so when I was a teen but occasionally would break out in my adulthood, primarily around menstrual cycle. I have also had HS flare ups quite frequently in my groin area most of my Pre T life as well.
Since starting T I still have the occasional groin HS flare, I shower daily now, and I use My Magic Healer on my flare ups which sometimes help sometimes doesn’t, but overall they’ve been less painful and more so just annoying.
The issue that I’m having and coming to Reddit for is that my chest acne has gotten really bad on T, especially around my menstrual cycle is when it appears to flare up more. I unfortunately have discovered this past week my first ever HS flare on my underboob :( as of right now it’s not super painful and I’ve been putting my magic healer on it, but living so long with painful groin HS has me absolutely depressed finding this underboob flare up. It’s super dysphoric too unfortunately.
I haven’t seen any specific posts in this thread or FTM threads about trans mascs dealing with HS specifically and was hoping to find some personal anecdotes on what others have done to help their HS vs their T acne.

I'm on track to start humira in about two weeks. I've done a decent amount of research, especially about how it can affect my immune system, but I wanted to ask the folks who have actually tried it. What are some things they don't really tell you about? General advice is also very welcome, I'm still new to all of this

Are their any women in here who have both HS and Endo? I’m doing research around how both are caused by inflammation and potentially histamine related and gut too? I’m seeing an Endo specialist at a research clinic next month and I’m just looking for any additional insight.

Here’s a link to my previous post.

https://www.reddit.com/r/Hidradenitis/s/uhTVAzJux0

So, I had the follow up with my surgeon, he did apologize for the miscommunication. He told me that I would most likely have to get this procedure done 6-7 more times. As of right now I have 4 new HS flares that that have emerged. So on top of healing cauterized skin I have 4 active flares😭 I met my deductible this year so the surgery didn’t cost anything but it cost me 2 weeks of unpaid work🥴🥴

If I would have known it wasn’t going to take care of my sores then I wouldn’t have gotten it. He said he can refer me to a plastic surgeon for the wide excision procedure and the skin graft. I don’t want the skin graft though, I’d rather let that area heal itself like I’ve seen people get on here.

So for future reference for the people who want to the surgery, please make sure your surgeon understands what you want and doesn’t assume because they are the doctor.

My whole life I only got a HS boil under my left boob. This weekend it decided to flair up on my groin and the pain is unbearable. I can barely Walk 😭😭 don't know how Ima make it through work this week..

Hope it at least pops tonight

Just had a deroofing done on Wednesday. I had three major spots under each of my armpits that healed horrifically and caused me pain, and my derm recommended surgery. Now that I’m three days post deroofing I looked at my open incisions and I cried. I’m so fucking happy. I have little to no pain, and while they look scary now I can see how they will heal and I can finally imagine wearing tank tops again. I know it’s early days and I have a journey ahead but damn, the actual excitement I feel right now was overwhelming.