Misdiagnoses of HS, turns out it was PVL infection
I thought this could possibly be useful for people who have HS symptoms but haven't gotten diagnosed yet. For the past 3 years I've been suffering with repeated boils and abcesses on my thighs, for 2 years the doctors ignored my requests for a referral to a derm, but thankfully this year when I came into the gp with another abcess, she agreed to let me get some labs done and I sent in a sample of my pus which came back as positive for both PVL and MRSA (😭💔) pvl is relitively rare but causes basically the exact same symptoms as HS, like in my case which is repeatetive boils and abcesses that keep coming back even with countless courses of flucloxacillin (which is apparently bc this bacteria is resistant to most penicillin related antibiotics so the doctors have been giving me a useless treatment for three years ).
However the important part is that treatment for PVL is different from HS unlike some cases of hs you can't really manage a pvl infection with lifestyle changes or diet changes, instead I got a 6 week course of doxycycline and antibiotic wash. So if you haven't officially been diagnosed yet with hs or have not gotten lab work done on the pus from your flare ups I highly recommend you do, especially since the symptoms are quite frankly identical, you could possibly have PVL which is very contagious and it's extremely important that you shouldn't get misdiagnosed with the latter in order for you to get the proper treatment to give yourself relief and prevent the spread of pvl if you were to have it.