Not to sound dramatic but do I have to be on the brink of death
I am really really struggling. I have ulcerative colitis and I’m supposed to have consultant team check ups every year. I don’t. I’ve had 2 appointments in the last 5 years that had to be requested and got downgraded to phone calls.
Since October 2024 I have felt horrendous. It started with fatigue and catching every bug going worse than usual and progressed to extreme fatigue, headaches, worsening vision, palpitations and general bloody awfulness.
I went to the GP and asked for my iron to be tested because last time I felt like this my iron stores were low. Got told my ferritin levels although drastically decreased were “normal”. They were 17, then dropped to 10 and stayed there for ages. They are now 7. I can hear my pulse and keep feeling like I’m going to pass out but it’s ok because my haemoglobin levels are normal.
My transferrin saturation levels are also low and I really just need someone to say oh why don’t we try fixing this obvious pattern but apparently that’s ridiculous. They would rather do shed loads of mris, ecgs and other tests and tell me everything’s fine and I am just imagining feeling awful so that I can barely drag myself through the working day, feel like I’m neglecting my kids and have zero energy left for my friends who I love and enjoy spending time with 😑