I just want my Humira back
I was on Humira for about a year without any side effects and it worked great for my HS. My skin was completely clear of my HS and I was so happy to finally have some relief. Unfortunately, I lost my job and my insurance and had to stop taking it, which means my HS came back. I was able to get on my boyfriend’s insurance after I lost my job, but they’ve refused to cover Humira. I’ve tried Cosentyx and Bimzelx, but both are giving me the same miserable side effects. I’m getting ulcers on my labia and in my mouth, as well as yeast infections and horrible acne literally everywhere on my body. The ulcers are super painful and make it hard for me to walk or eat. I’m not responding to Fluconazole, either. I don’t know what to do. I’m afraid of trying another biosimilar because of these issues. I feel like I’m just turning into a science experiment, especially since I’ve been told the ulcers are a very rare side effect. I’ve gone through 3rd parties to appeal the denial for Humira, and my insurance has said there’s a 0% chance of it getting approved. There’s also no bridge program for Humira. I’ve just been stuck in such a miserable cycle and I’m so frustrated.