Look at what the Visible Health band is showing during this flare. Invisible illness made VERY visible.
My brain feels like it is burning again. This time I am wearing a Visible Health wristband. It has been so validating. It tells me when I am overdoing it so I can pace myself. It also shows when I’m in a flare while doing absolutely nothing all day, too, apparently. I’ve just been sick in bed all day, weak with a burning head. My budget is 7, and I am way over budget from exertion at 23.9 “pace points”. I don’t see how to attach a screenshot from the Visibe app to here; guess it’s not allowed.
Anyway, I am just lying here and it says I am exerting even now, and I haven’t moved for an hour. It doesn’t show this kind of exertion when I’m not in a flare (but it still tells me when I overdo it). This is really interesting, and like I said, very validating. I am not affiliated with the company; I’m just a customer/subscriber. I’m not saying you need this wrist band. I’m just saying we all have validation, looking at this.