u/Efficient-Damage6058

Just passed a toddler on the path by my house who saw me, stopped, pointed at my wheelchair, and yelled “WOW, IT’S A ROBOT!”

For context I (29) am a C5/6 quadriplegic but my VP shunt was placed before my injury. I am currently seeing a neurosurgeon who is addressing my syringomyelia and associated hydrocephalus. We are in the process of seeing if/how we need to surgically intervene because it appears the shunt in my spinal cord has failed, as the syrinx is expanding and my ICP is going up.

I recently had a shunt tap and my neurosurgeon checked my pressure a week ago. I believe he said it was at 22 and he would've liked to see it below nine, so he adjusted my strata from a one to a .5 and I'm getting a follow up CT on Friday to assess if it's made a difference.

I'm seeing a minor increase in muscle engagement, which is reassuring, but the pain in my neck and head has skyrocketed.

I know it's weird, but the only thing that helps is rapidly hitting my forehead with my wrist, or shaking my head.

Has anyone else experienced something like this? I don't know how to describe it other than it feels like my brain itches?

My girlfriend is looking for a new (used) car, and we’re looking for something that I can potentially slide board into from my manual chair to the passenger seat.

Looking for a door that opens wide enough, a seat that’s not too high, etc.

If you’re comfortable, please let me know what your experience has been transferring in your car!