Anyone scared of been killed by this condition or its side effects or getting secondary conditions or like sudden dropping to the floor etc
I'm on high alert with this condition and all i can think about is money - if i survived and was ok but not ok to work I'm so nervous about money and not been able to drive no more and stuck at home living on a hill etc
I got to have a abdominal MRI I’ve got a VP shunt which doesnt have a lock on it so it can can be moved in MRI machines, if your head doesn’t go in is it considered safe as our local hospital doesn’t have a NS department there’s obviously a good chance they’ll refuse to do it.
This is going to be a long one so I'm grateful in advance if you read all of this and share your experiences though I'll try to make it as short as possible.
I was diagnosed with hydrocephalus shortly after birth from a level 4 hemorrhage. ever since I was a young teen I always had unstable emotions, going from happy to depressed in the blink of an eye.
I had a hard time focusing on school (ADHD, slow learning) and I just felt so overwhelmed all the time about life and what I had to navigate. I'll skip incidents that triggered my depression starting in about 8th grade, Fast forward to 2016, I held my first real job for a year and a half and things were starting to look up. But quickly my dad offered to pay for me to go back to school (I dropped out of college. It was too much). In january 2018 I took the leap of faith and decided to go back to school, but in June of that same year my original shunt failed due to an infection. I had an emergency surgery to remove the infected shunt. I was in the hospital for two months being monitored (they even thought I didn't need it). So they sent me home and about 3 weeks later I woke up in the middle of the night with the worst migraines id ever had, and I was vomiting and was losing my vision. Long story short they put a new shunt in and I've been "cured" ever since.
I've held two jobs since that incident and I did mostly okay, though ever since my incident it seems every single task I did took all of my energy away and I've felt depressed like what is the point in doing any of this. Every bit of my life has felt overwhelming or difficult to the point where I don't feel like doing anything. I wonder if that shunt failure has changed me in some ways. Does anyone here feel overwhelmed by life all the time? I find it difficult to navigate my job loss. I haven't been employed since January 2025 and that loss hasnt helped my depression.
TLDR
Anyone else have difficulty navigating life because of their hydrocephalus??