Hydrocephalus conference costs are insane
I recently reached out to some clinical trial people for shunts (Rhaeos… they have a device that measures csf flow rate in real time). They told me to come to the hydrocephalus Association conference and enroll there. It’s going to cost my husband and I $600 for us both to step foot into the conference. I emailed the association and asked them for scholarships and they said they ran out of money for that long ago. I am now offering labor in order to get into the conference for free. Since when do we bar hydro patients from healthcare access ? They can’t just let a patient in so the patient can enroll in a clinical trial? and yes, I say “healthcare access” because people with chronic, incurable illnesses rely heavily on clinical trial research as their healthcare.
I’m excited to receive the same monitoring that diabetics have received for over a decade I just don’t wanna pay $600 upfront to go talk to the clinical trial company and enroll.