Baby with brain bleed. Did your baby cried?
My son was born at 25+4 weeks. Now he is 7 months actual, 4months corrected. He spent most of his life in the hospital. He’s had grade 3/4 brain bleed, post hemorrhagic hydrocephalus, BPD, PDA, inguinal hernia. He id NG tube fed, still teaching him sucking.
My main concern is his milestones. He never properly cried, he reacts to pan. He was not looking for my voice. He was hypotonic before but now I feel his arms and legs stiffening. He does not have head control, his head is so flat on his right side. We are planning to get helmet therapy but his neurosurgeon said it might not be possible because his skulls are fusing.
I worry about lots of things. I am trying my best to stimulate him at home. In the children’s hospital he was on PT, OT and SLP. We are still waiting for his appointment soon.
I feel like I am failing him. And I am scared for the disabilities to surface. Does any parent here have a baby and not crying?!