u/Electronic-Degree922

Idk why I am writing this. This may be a whole new level of low n pathetic. I need a friend. An epileptic friend....not just who knows about epilepsy. Idk guys.

I am having very weird thoughts. I have a lot of friends but since I am busy not talking to them, I can't share them with anyone without being judged. Can anyone help me?

Hey guys,

​

I am having these weird "episodes" sometime during my sleep. Especially after a 6 hour sleep (usually I sleep for 10+ hours). So I would wake up with a banging headache (before time, without alarm) and would take a "nap" of 15-20 min till it's time for my alarm and the headaches would get worse and now they come back in the form of auras. I would sleep, have auras and wake up confused every 30 min, and it's a pattern that continues for 2-3 hours unless I absolutely decide to take a migraine/ headache SOS. Idk is it related to my epilepsy or something else.

​

Hey guys,

​

I am a researcher/ PhD scholar and a fellow epileptic. I want to write a scientific review paper about the scientific basis of hardships including drugs and stimulants.

​

I'd appreciate it if you guys can help me with epilepsy and neurology related issues that you'd like to see the scientists discussing, even if you feel like you are the only one struggling. Ik we a community discuss our feelings and hardships related to our condition. I just want to make it scientific so that biologists and people from vast / different backgrounds can read and discuss this on a scientific level.

💜

Edit: I am currently writing on the drug abuse in epileptic patients, from nicotine to methamphetamine to stay alert after AEDs act as CNS depressants which worsen the condition.

Please help me....idk what i want to talk about but id really help if you can talk to me.

I'd really appreciate it. I'm sorry if you feel bothered.

It's more humiliating than a tonic conic

I'm asking again. Told my doctor as you guys suggested and he just said it's probably nothing and patted on my shoulder. Today I fell off my bed and kept lying on the floor until my roommate helped me up. This is humiliating.

Any suggestions?

I have been on several different medications including Perampanel 4 mg. I have drug resistant epilepsy. I thought this medication would help me a lot since it helped my friend. It makes me fall a lot. I would be walking or getting off of a vehicle and i would just fall. No matter where I am and who is watching. It doesn't hurt when I fall at that time but hurts afterwards. No cuts or scrapes but random muscle would hurt. I am frustrated and ashamed.

27F being labelled as drug-resistant by my physician. I have a small tumor in my left temporal lobe. It used to be just auras now it is tonic-clonic. I was on 4 different drugs when

I had 3 tonic clonic seizures in one day and now my doctor (who i consider to be an asshole) has put me on 5 drugs where: Lacosamide 100 mg, Brivaracetam 100 mg, Oxcarbazepine 600 mg, Clobazam 10 mg and Perampanel 16 mg.

I feel so isolated and depressed. It hurts both physically and mentally.