Good’s syndrome???
Hi! I’ve had myasthenia gravis for almost 3 years and had my thymectomy 2,5 years ago.
I’m on cellcept but I get sick so often! Mostly virus related and not bacterial but still, I’ve been sick about 5 times since the start of 2026 and they usually last 2-3 weeks. I also had shingles one time.
I was at my check up today and they mentioned good’s syndrome, does anyone know anything? I only found some medical papers and they’re hard to read. I got some tests done so I’ll update if I do actually have it. I also read that it has a 70% survival rate for the first 5 years, I’m scared I’m only 20 and I want to build a life but this seems like it’s it for me… help please 🫶
(Good’s syndrome is a immune defect you can get after a thymectomy and can cause infections and hospitalization)