u/Entire_Perspective40

My pm activity readings are much lower than my actual activity readings. For example it says I had 30 mins of activity yesterday when I know I’ve had at least an hour and a half. My rate response settings were adjusted a couple months ago and I noticed it then. I was told not to worry about it. Thoughts? I’ve been really tired with headaches and when I sent the office a transmission they said everything was fine.

ADD: I make a point to walk daily at lunch 20 mins and after work 30 mins

I have a dual lead Medtronic pm for SSS (bradycardia with pauses). I currently am paced atrially 78% and ventricular <1%. I have subclavian vein stenosis/blockage from the leads (I have very small veins and the leads are blocking bloodflow). I had a venoplasty done in January without any lasting results longer that a week, was put on Plavix and baby aspirin. I have continued to have shoulder pain neck pain and headaches ever since. New cardiologist recommended a leadless pacemaker with atrial pacing only. Can get the pacing I need but without the complications of the leads. Insurance denied changing out the current one citing it wasn’t medically necessary and too risky. Yes my current pacemaker is pacing me appropriately. However, there does not seem to be any consideration for my discomfort or the potential long term complications from having these leads. My insurance allows 2 appeals and I lost both (my cardiologist filed on my behalf). So now I’m not sure what to think!!!! Will my body create enough collaterals that it doesn’t matter? Or am I really being set up for problems when I get these leads eventually replaced? I’m meeting with my cardiologist this week and still need to schedule appointment with my EP but would like to go in with some knowledge. Any help/insight greatly appreciated.

What do the scheduled automatic transmissions measure and how long does it take to complete?

I’ve had migraines with and without aura for decades varying in severity and frequency. Like many of you, I have tried many medications-preventative and abortive - that have worked then not worked then worked then didn’t work. I can’t take triptans because of a heart condition (and they make me pass out), it’s a constant struggle to get injectables covered by insurance, topomax makes me feel like an idiot etc. I’m hypersensitive to medications. So a small dose goes a long way. I take Ubrelvy as an abortive which decreases severity of attacks, but not duration. I clearly need a preventative with 15+ migraines per month. I received a couple trial packs of Qulipta from my neurologist -60 mg and have just started trying them halved (so as to extend my supply). So I’m taking 30mg at night. Even on this dose I feel really spacey. I understand that this is a side effect and can improve “as your body adjusts to the medication”. My question is - if this happened to you, how long did it last? Sadly I don’t even know if my insurance will cover this medication- while it is on their formulary, the number you get each month is limited like my other crgp trials. Which doesn’t make sense to me because Qulipta is a preventative. Anyway, this is already too long winded. Any feedback is appreciated. I have not tried Botox yet, which will be my next stop- I just need relief without feeling like a zombie. Thanks!

5 days post op and still have barely gone. Prunes, warm water, stool softener, MiraLAX, walking around. When does it get better??!!