Macroadenoma turned out Micro with elevated CK+Prolactin levels… Autoimmune Disease?
28F, was diagnosed last summer after experiencing extremely dry and patchy skin, slow wound healing and Galactorrea. I thought it had to do with my PCOS, but after the first MRI, a 12x6x8,7mm macroadenoma was confirmed by my first Endo.
I then moved cities and switched to public healthcare (big mistake). Fast forward 1 year, 2 more MRIs and extremely vague results, I am now left with a “6x5mm microadenoma”, with a completely different shape than last year, and no further measurements.
My prolactin levels have lowered : 62.90 to 52.90 ng/ml, Testosterone levels currently at 0.60 ng/ml, and for the first time ever, my Creatine Kinase (CK) levels were measured last February: 1247 UI/I - (normal ranges 29-168). I was not working out then, and consume very little animal protein…
I haven’t found anyone else with elevated CK levels and a pituitary adenoma, so I am a bit worried, as the endocrinologist doesn’t seem to care much, nor sees a correlation. Should I seek a secondary opinion? much appreciated