r/Prolactinoma

Feeling difficulty to take a full breath in or yawning alot like i am hungry to air

I had elevated levels of Prolactin and doc prescribed Dostinex, 0.25mg, twice daily for 4 days continuously. The side effects from this were just terrible. Extreme nausea, headache, fatigue, stuffy nose, constipation... all the doc could tell me was that it's normal, nothing to relieve it, and just like most gynaecologists I've encountered, I didn't feel heard. I finshed the dose and the side effects are still there. Any suggestions on how to deal with this? I got Ondansetron but it's not really doing much.

Hi everyone,

Has anyone experienced cognitive decline as a result of gamma knife radiation? I had mine in January of this year, and about 6 months later, I started noticing a real change in my memory and cognitive function.

I starting to forget very obvious things like how to do basic self-care activities, and important life admin things like passwords or PIN codes.

I am also sooooo tired in a way I’ve not felt for a long time. It’s becoming debilitating - I’ve taken a pay cut at work to reduce my demand, and am still barely getting through a work day. I’m also irritable and cranky from just being constantly confused and exhausted, and it’s affecting my marriage and relationship with my wife and daughter.

Does anyone know if this is potentially a result of radiation or something tumour related? My hormones are all within normal limits (except PRL), and my endo is pretty confident that it’s not hormonally driven.

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Hi everyone, I’m 30 and getting married soon, and I’m honestly feeling very scared and stressed about my periods and fertility.

I’ve had PCOD for around 10 years, but my periods were mostly regular (around 30 days). Four months ago, I was diagnosed with hypothyroidism and started 75 mcg medication. My thyroid is now normal.

For the last 3 months, my cycles were around 34–36 days, but this month I missed my period. My thyroid is still normal, but my prolactin came back at 32.2.

I’m really worried that the high prolactin is causing my delayed period and may affect my fertility. 😔

Has anyone been through something similar with PCOD, thyroid and high prolactin? Please share your experience or advice. I’m really anxious and would be so grateful for some reassurance. ❤️

Hi everyone, I’m 29F and have been dealing with female pattern hair loss (FPHL) and PCOS for several years.
My periods are regular but very short — usually around 2 days, although the flow itself is normal. I’ve been using minoxidil and taking iron supplements for about a year, and initially I did notice some improvement in my scalp/hair density.
However, my hair fall has increased significantly after I lost around 10 kg through a high-protein, low-carb diet. During this period, I was also taking whey protein. My dermatologist believes the whey may have triggered telogen effluvium, and I was also taking Caberglow (cabergoline), which had been prescribed by my gynecologist.
I stopped whey after my doctor advised me to, but my hair shedding has continued and I feel like I’m back to where I started.
My recent prolactin level was 24.71, and my other hormone tests were reportedly normal. I’m still using minoxidil and taking iron, but I’m struggling to meet my protein requirements without whey.
At this point, I honestly don’t know where to start. I’m feeling really insecure about my hair and it has started affecting my confidence a lot. I’m also scared about my PCOS and elevated prolactin and whether they could affect my fertility or future pregnancy.
Has anyone experienced something similar — especially hair shedding after significant weight loss, PCOS + FPHL, or elevated prolactin?
What helped you identify the actual trigger and get the shedding under control? And should I be concerned about a prolactin level of 24.71 in terms of fertility?
I’d really appreciate any advice or experiences.

Hello everyone, please I hope you can help me. About a year ago, I started noticing my libido dropping; I didn't feel any attraction—not even to porn—and I focused on my daily life. I discussed this with my partner, as I felt unable to have a normal sex life; I felt tired, my physical stamina had plummeted, and I even started having anxiety attacks. I visited a urologist for a check-up; everything "down there" was fine, but my blood test showed a testosterone level of 0.27 ng/ml, so he referred me to an endocrinologist. The endocrinologist ran another test with the same result and found elevated prolactin (24.26 ng/ml). He initially prescribed vitamins and a 250 mg testosterone injection. However, since I want to have children, he changed the prescription to 0.25 mg of Cabergoline and 2.5 mg of Letrozole once a week. I looked up information on these drugs because I was concerned about side effects—given that I suffer from anxiety, am on cholesterol-lowering medication, have varicose veins, and experience a racing heart during arguments—but the doctor assured me there would be no issues. Online, I read that Cabergoline can cause low blood pressure, dizziness, and headaches. I don't have any of those symptoms right now, but I’m terrified that starting the medication might affect me badly or even land me in the emergency room. I’m a very anxious person and tend to imagine terrible scenarios. I found this subreddit and am hoping to find some peace of mind. It’s worth noting that two weeks ago, I underwent an ECG, a stress test, and a Holter monitor test, and the results were all normal.
Im 30 yo (M) by the way.