u/EquivalentAsk9

Total bowel shutdown

Has anyone experienced this? About 2 years ago I just stopped going to the loo, completely and utterly. All peristalsis has ceased.

I made it to 2 months+ without a single bowel movement, trust me this was as bad as it sounds. No one would help or believe me and eventually after a *crazy* amount of laxatives and severe distress that i was going to die, things started to move. I am now dependent on laxatives to function at all and am housebound due to the urgent nature of them everyday until midday.

That's the backstory and until now I've been solely focussed on researching GI stuff. However, In 2014 I had a laporoscopy for endo (I didn't even know what it was at the time!) i had a lot of pain and very heavy periods. The periods eased up after the op and the pain persisted, I carried on as we all do.

My operation notes never made it to my Drs records and I just managed to get hold of them. Turns out it was stage 3/4 back in 2014 so I'm thinking maybe theres a link?! No mention of bowel endo in the notes but he was a regular gynae surgeon so not sure how hard he was looking.

If anyone has experienced anything similar I'd love to know. p.s. no constipation cures please, this is not normal constipation its mechanical or nerve related.

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u/EquivalentAsk9 — 8 days ago

Using Claude to read scans

I've spent the entire day uploading my MRI imaging into Claude to see if the nhs missed anything. Amazingly claude can read scans without a need for additional software.

Upshot is it seems they have missed something (but also taking it with a pinch of salt as I also know ai can tell you what you want to hear). This is very early technology and I don't know how accurate it is.

However, that said.... what it has uncovered is very exciting! My mri images show my sacral nerve is being compressed by my "very" bulky retroverted fibroid uterus and no one picked it up, i also have a lot of tarlov cysts in the same area which may or may not be relevant. This ties in with all my symptoms and gives me good info to take to my neuro gastro appt in a few weeks time.

Writing this to say it's definitely worth requesting imaging and subscribing to claude for a month to try this if you are feeling tortured and desperately trying to find the cause to your condition. You can only load so many images at a time but if you ask it for a prompt to continue seemlessly in another chat it will so do.

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u/EquivalentAsk9 — 15 days ago