u/Euphoric_Big5164

Hi everyone,
I’m a 29-year-old man, and I’m trying to understand whether anyone has experienced something similar to what I’ve been going through.
About two years ago, I suddenly developed widespread neurological/sensory symptoms. The most striking symptom was severe allodynia: even very light stimulation of my skin could feel painful or extremely unpleasant. In particular, I became very sensitive to body hair moving against my skin, as well as to clothes and bedsheets touching me.
I also experienced:
burning sensations in different parts of my body;
tingling and pins-and-needles;
fasciculations;
fatigue and rapid fatigability;
joint/musculoskeletal pain;
abnormal sensations in my hands and feet;
a persistent feeling in my left foot similar to numbness or “walking on cotton.”
At the time I underwent several investigations, including brain/spinal MRI and EMG, as well as blood tests for autoimmune diseases. Nothing clearly explained the symptoms. My EMG was essentially normal and the imaging was normal. I was also told that I had spasmophilia.
What is particularly strange about my case is what happened afterwards.
All of the symptoms gradually disappeared.
I eventually went into a complete remission that lasted approximately 14 months. During that entire period I had essentially no neurological symptoms at all. I was living completely normally, going to the gym, playing soccer, spending time in the sun, working, and I stopped thinking about the illness altogether.
Then the symptoms came back.
The relapse initially looked very similar to the first episode, with widespread allodynia, burning, tingling and abnormal sensations in my feet and hands. Again, there was no clear weakness.
What worries me is how quickly everything seemed to come back and intensify. After having been completely symptom-free for more than a year, I felt as though I went from normal to having widespread symptoms again within a relatively short period of time.
More recently I have also developed significant gastrointestinal symptoms, including:
severe bloating, especially in the upper abdomen;
feeling extremely full after relatively small amounts of food;
nausea;
occasional vomiting;
epigastric pain/burning;
frequent belching and acid reflux;
sometimes even drinking water seems to cause pressure/bloating and a sensation of acid coming back up;
constipation/changes in bowel habits.
I have noticed that the gastrointestinal symptoms can fluctuate considerably as well.
I am wondering whether there could be a connection between the sensory symptoms and the gastrointestinal problems, for example through autonomic involvement.
I have read about small fiber neuropathy (SFN) and possible autonomic involvement, and I wonder whether this could explain some of the symptoms. However, I have never had a confirmed diagnosis of SFN.
One thing that confuses me is the long complete remission. If this were an autoimmune small fiber neuropathy, could symptoms disappear completely for more than a year and then return quite abruptly? Or would that pattern make other possibilities more likely, such as functional sensory dysfunction, central sensitization, autonomic dysfunction, or another fluctuating condition?
I am also currently being evaluated for the possibility of gastroparesis because of the early satiety, bloating, nausea and vomiting. However, I understand that similar symptoms can occur with functional dyspepsia or altered gastric accommodation even when gastric emptying is normal.
Has anyone here had a similar course?
Especially:
Did you have widespread allodynia/burning/tingling?
Did you have a completely normal period lasting many months or even years?
Did the symptoms then return quite abruptly?
Were you eventually diagnosed with SFN or an autoimmune/autonomic disorder?
Did you have gastrointestinal symptoms as well?
If you had a gastric emptying study, was it actually abnormal, or was it normal despite severe nausea, early satiety and bloating?
I’m particularly interested in hearing from people who had significant GI symptoms but normal gastric emptying, because I’m trying to understand whether my symptoms necessarily point toward gastroparesis.
I’m not looking for a diagnosis from the forum — I’m mainly interested in comparing experiences and understanding whether this kind of relapsing/remitting pattern has happened to other people.
Thanks in advance to anyone willing to share their experience.

My story officially began two years ago when I was diagnosed with Spasmophilia / Latent Tetany, which was confirmed via electromyography (EMG).
Everything started out of nowhere with intense and terrifying symptoms: diffuse burning sensations, allodynia (even the mere contact with my clothes caused me pain), and altered sensations (dysesthesias). During that initial episode, I also suffered from severe asthenia—a profound exhaustion that left me completely drained of energy. At the time, I had not contracted any acute viral infections; the episode was linked to a period of heavy physical and emotional stress, chronic hypervigilance, and subclinical hyperventilation, which had altered my blood pH and reduced my active ionized calcium. After about 6 months of targeted management, that first nightmare faded away, and all symptoms, including the severe fatigue, completely disappeared.
Following that, I experienced 14 months of total and complete remission. I went right back to my normal life and daily activities, with completely healthy sensory function and zero symptoms. My body felt well.
Recently, however, after more than a year of total wellness, everything acutely relapsed. The symptoms returned, but this time with an intensity that feels worse than two years ago, and they have been accompanied by new sensory presentations. I feel diffuse, wrapping burning sensations, allodynia, and dysesthesias. On top of that, I am now experiencing sudden heat flashes from my knees down and in my hands, a bizarre and distinct sensation of my clothes feeling wet (hygroesthesia), and my hands regularly go numb every single night while I sleep.
This new flare-up began at the exact same time as a noticeable respiratory infection that has been going on for days, characterized by thick, green mucus in both my lungs and nasal passages. Recent blood tests done over the last few days have captured this current situation:
Ionized Calcium: 4.1 mg/dL (Low; the standard reference range is 4.4–5.4 mg/dL).
Vitamin D: 27 ng/mL (Insufficiency, below the optimal 30 ng/mL threshold).
Magnesium: Perfectly normal and within range.
Today, I find myself in the middle of this storm. On one hand, there is the acute infection with green mucus and a sharp drop in active calcium, which deprives my nerves of their shield; on the other hand, there is a massive amplification caused by the state of alarm and anxiety I have entered due to this pain. However, there is a notable pattern: in the morning I tend to feel almost fine, the burning in my feet disappears, the allodynia decreases, and the symptoms constantly shift in location and intensity throughout the day, fluctuating significantly.
In light of all this—the past diagnosis of spasmophilia, the current calcium level at 4.1, the green mucus, and especially the long 14-month remission followed by such specific, fluctuating sensory symptoms:
What is your opinion on this overall clinical picture?
Do you know of other cases like mine, where a patient experiences a long period of complete wellness and then suffers a severe relapse with worse or new sensory symptoms?
Do you believe this is simply a severe flare-up of spasmophilia, or is it worth investigating a reactive, post-infectious component of the small nerve fibers (SFN)?