u/Evaporate3

I am over a month post diagnosis, bone only, ER/PR+ HER2-.

I am still healing from my spinal surgery, I needed the tumor removed, it was an emergency so I still haven't done radiation yet. But after radiation, I'll be on AI, CDK46, ovarian suppression and bone shots....

I am more terrified of living a miserable life of side effects than the MBC itself. I keep seeing horror stories about side effects but I understand people with negative experiences would more likely come forwards than people who are just... living life.

So is anyone out there living OK lives with mild to no side effects?
How long were you on the meds?
What did you do to combat side effects?

I cannot find women who are similar to my case. I'd like a friend.

I had cancer 9 years ago... then 2 years ago I started having neck problems-mainly stiffness. I had no idea there was a tumor on my c-spine until I needed an emergency surgery because my neck became unstable. My blood work is clean, I've been very active in the gym, I was even going to raves. I was fine except stiff neck.

After they removed the mass, they tested it. It's mets and ER positive. I dont have the full pathology yet, we are still waiting for results its been 3 weeks- is it normal to take this long????

. I did a full body CT scan and thankfully there's no mass or anything anywhere else.

Someone I talked to almost daily hasn't been responding to my messages since the diagnosis a month ago. They have their read receipts on so I know they see my messages...

Please tell me this is not a thing.

I am newly diagnosed and I've been spiraling since. I have a favorable form of MBC, I see decades survival stories online but it's still MBC.

I am wondering if support groups actually help and give hope. I've been in therapy groups before in my younger days and felt more like a pity party. I need hope and motivation to keep going.

Or did you find a therapist helpful?

3 weeks post op, base of skull to T3 fused. It fucking sucks- not in a good way.

I have always been super talented at giving oral on penises.

Any one else give oral sex just fine after healing from extensive fusion or am I doomed?

Hey ladies (maybe some gents)

I am newly diagnosed with MBC.

What positive lifestyle changes have you made that helped you navigate this? Mental health, physical health, diet changes? What nutritional changes have you made to make this easier for you? What life and social changes did you suddenly make?

What are you doing to manage the side effects of the medications?

I am ER+ so im seeing I need to add more fiber, low glycemic diet, cruciferous vegetables... I'm also done with alcohol.

Some mental changes I've noticed: almost over night I had no desire to waste time with certain people. I ghosted my situationship- I was madly in love with him then suddenly I wasn't. I participate more with my family even though I'm usually a loner. My social anxiety WENT AWAY and I read way more.

I'd like to hear some accounts about people living decades with this, please.

I had breast cancer 9 years ago. I thought I was in the clear- way past the reoccurrence risk. 2 years ago, I started having neck problems, mainly stiffness.

It wasn't until my neck became unstable and needed emergency surgery that I found out the mass is metastatic breast cancer. Preliminary findings show strong ER positive, still waiting for the rest of the pathology.

Did a full CT scan and found no other mass- not even in my breast but the mass from my neck is def breast mets. It stayed on my bone only for 2 years so that's good, I guess.... so i guess im considered occult?? Oligometastatic?? My docs did not confirm but I learned these terms online. It's bone only, and no other tumor. Blood work clean if that means anything.

I am 3 weeks post op and I am crying daily. I can't believe this is happening, right after losing my mom.

I read online that my subtype is "favorable" but I am having a hard time. Please tell me something reassuring.