u/Every_Carpenter_158

I’m not sure if i can make a post here yet as it’s a ‘probable’ diagnoses.

quick background story i’m 27 symptoms started when i was 26, i was diagnosed with a respiratory bacterial infection that i had for two months took doxycycline and then afterwards i started experiencing weird symptoms relating to ALS, twitching, feeling weaker/heaviness, muscle pains/cramping, atrophy, stiffness, shortness of breath etc. mainly down the left side of my body, back pain, myofascial tender sore muscles (i’m sure it’s pain related to atrophy) blood tests/MRI have been normal have i went to a neurologist and got a strength test of 3/5 on my left and 4/5 on my right, currently experiencing gradually worsening all over including mild swallowing difficulties but still functioning and have a repeat EMG next week, My first EMG came back clean after 3 months of symptoms but progressively have gotten worse since then it is now 1 year 2 months since the first emg i have had, i’ve got the atrophy posted on my profile.

I think whoever mentioned the bruising being related to MND is right, i’m experiencing random easy bruising due to weaker muscles/less padding

I’m not sure if i can make a post here yet as it’s a ‘probable’ diagnoses.

quick background story i’m 27 symptoms started when i was 26, i was diagnosed with a respiratory bacterial infection that i had for two months took doxycycline and then afterwards i started experiencing weird symptoms relating to ALS, twitching, feeling weaker/heaviness, muscle pains/cramping, atrophy, stiffness, shortness of breath etc. mainly down the left side of my body, blood tests/MRI have been normal have i went to a neurologist and got a strength test of 3/5 on my left and 4/5 on my right, currently experiencing gradually worsening all over including mild swallowing difficulties but still functioning and have a repeat EMG next week, My first EMG came back clean after 3 months of symptoms but progressively have gotten worse since then.

Neurology Appointment Clinical went just as expected, she noticed the atrophy on my left side of my body, noticed abnormal reflexes/weakness, diagnosed me with probable MND and booked me in for a repeat EMG.

I want to live i want to have a long life with having my own kids, i want to go out and make memories without my body getting in the way.

It’s heartbreaking this is happening to me/us, everyday i just feel worse and worse. Lost all hope so just living in the present although my life feels like it’s flashing by my eyes, the only thing i can do is some how pray a cure happens, all my muscles are starting to be effected now.