I'm so scared that this is permanent.
On January 27th, 2026, I was sitting on my couch late at night playing a video game, when all of a sudden I got extremely lightheaded, like I was going to pass out. I immediately stood up, grabbed onto the wall, and started pacing until it went away. It lasted maybe 10 minutes. The same thing happened the next night, which is when I began to get concerned. Both of those occurred late at night, but on the third day it happened when I was in a therapy session. On day five, I was working when it happened, and had to go home early. I had to pull over several times on the drive because I was so out of it.
I ended up going to Urgent Care and the ER a couple days after that, both of which didn't discover or resolve anything. I was given a short prescription of Toradol and Meclizine, but the Toradol did nothing and the Meclizine made things a lot worse, so I quit taking it immediately.
My symptoms started out with the short bouts of lightheadedness, then escalated into entire facial numbness, and near-total derealization.
I saw my primary doctor who also didn't know what was wrong. She offered to refer me to a neurologist, an offer which I just took her up on yesterday because I'm getting desperate. I've been going to physical therapy every other week for about two months now, and I've noticed an improvement on the facial numbness, but the overall "floaty" feelings and eye strain won't stop.
My PT said that he's been treating it as cervicogenic dizziness, and that he's done just about everything he can do at this point, and recommended that I see a neurologist for the remaining symptoms.
I'm able to drive and work but only if I use every fiber of my being to focus on the task at hand. If I even feel the tiniest bit lightheaded, it's all over for me and it take hours to return to normal.
I've been doing research on my symptoms while waiting for the neurology referral to go through, which is what led me here. And it's scary because it seems like most people, even if they do get mostly cured, never fully recover and the progress they do make take months or years. I don't know how I can live like this for the rest of my life. I don't deserve this, none of us do. Why can our bodies be so cruel to us for no reason? I want to be able to function again.