u/Excellent-World-476

Hi, I’ve read a lot about tongue cancer treatment experiences and people saying they wished they had gotten tube feeding sooner during treatment. I have tongue cancer and already had a partial glossectomy that I had done due to precancerous cells which obviously did not solve the problem. However I also have anorexia Nervosa with severe trauma from forced tube feeding and literally unconsciously pull out an ng tube if it is inserted. Is it possible to do chemo and radiation without the insertion of a tube?

Not sure if this could be triggering or not but put on case…..

After two terrible medical admissions at my local hospital where I was followed by the ED team and internal medicine and I was certified involuntarily and put on bedrest, I honestly was terrified about ever going back to that ER. Both times, when I wouldn’t agree to being involuntarily certified longer and submit to rapid weight gain via tube feeding, I was discharged and told they wouldn’t do more to help. I seriously thought about risking death before submitting myself to such horrible care.

However, my bloodwork came back last week with critically low potassium and phosphate so I went back to the ER. This time they didn’t sent involve the ED team and things went so much better. I was NOT certified. The staff was lovely and they listened and respected me. The one issue was the ED dietician wouldn’t see me because I wasn’t admitted under the eating disorder team and the regular dietician wouldn’t see me because she didn’t handle eating disorders. Luckily I have knowledge and could handle ordering my meals and snacks on my own although it was harder as the week went on. For the first time, they asked me if I felt ready for discharge and I didn’t feel like they were forcing me home. As always leaving the safety of the hospital was scary but this time it was a decision I got to make. Grateful that this admission felt so much better.