u/Existing-Dot2939

▲ 6 r/acromegaly+1 crossposts

Pituitary surgery advice for single parent

Hi all, I have been on a long journey with diagnosis, and have found out I have a multiple hormone secreting adenoma that has to removed. Currently somehow experiencing a tumor that is secreting growth hormone, ACTH, and cortisol. My surgery is scheduled for the 31 of this month. I haven't had much time to plan or process. I have a 1 year 10 months old boy and I am a single mother. I am so afraid about what recovery will look like and I am scared to have to surgery. I don't have much of a support system and don't know what to do. I have my sister who can help and my mom for about a week and felt confident this would be enough time but I am now reading that apparently full recovery and being able to safely lift things can take up to 6 weeks. My son is almost 35 pounds. I am devastated. There is no way I won't be able to lift my toddler when I am alone for that long and I live on the second floor apartment. Things like getting him in his carseat and out for daycare, day to day dealings with a toddler who is rambunctious and energetic and just a natural caveman and I am really stressing out and don't know what to do or expect. If anyone has had a similar experience and can share any tips or advice please offer it. His father is not active in his life so I do not have the option of having him stay with him. I feel incredibly sad, lonely, and helpless right now having to feel like I have to pick between being able to care for my son and addressing health issues. Sorry if this is written very sloppily i'm a mess and stressed tf out

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u/Existing-Dot2939 — 12 days ago

Glucose Supression Test + Was advised to seek second opinion

Hi everyone I have been monitoring a pituitary tumor for almost 3 years now. I recieved my first igf-1 test last year in august and it was a 389. Fast forward now and I had it redone in April and it rose to a 498. My endocrinologist sent me for a glucose suppression test and my results came back as following in the image attached. She told me to seek a second opinion before going to see a neurosurgeon. Are these scores plus everything else enough to just go straight to a neurosurgeon, or do you guys think they're not indicative of acromegaly? I'm really hoping to avoid surgery if possible and try medications. Feel free to share any personal experiences in the comments or any advice.

edit: i also have high cortisol, and high ACTH.

u/Existing-Dot2939 — 2 months ago