u/Expensive_Speaker953

▲ 3 r/POTS

POTS in the Netherlands 🇳🇱

Hii everyone,

I have pots and live in the Netherlands…I don’t feel like our medical system knows a lot about it…

I see a lot of people in the US with pots getting a liquid IV and stuff…

My doctor doesn’t want to medicate me for it since I have a low blood pressure and I don’t respond to medication well in general.

So I don’t know if there are other potsies out there in my area….that know more about this..

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u/Expensive_Speaker953 — 14 days ago
▲ 3 r/POTS

Hiii everyone,

I have been diagnosed with pots 2 months ago and lately I have been fainting more frequently…I think it’s the hot weather that ain’t helping…and just me overdoing it…

But I am very new to it all and it feels really scary and my boyfriend doesn’t know what to do when I faint. Does he need to wake me up?

He already lifts my legs up when I am laying down…and he always tries to wake me up…

But what can he do?

I always feel so terrible when I wake….the craziest headache and nausea…

Do you have any ideas??

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u/Expensive_Speaker953 — 15 days ago
▲ 1 r/POTS

Hii potsies, I was wondering for you who also use tachymon, at what heart rate do you get notified?

I have 120 and 130….but I think I need to higher it up since my heart rate can vary from 60 to 185….

I would love to hear from you…and if you don’t use tachymon (anymore) what other app do you use for your POTS….is it better than tachymon?

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u/Expensive_Speaker953 — 15 days ago