Hey everyone ! I’ve made a few post on here so here is my update. Finally got to go to the doctor on the 30th of April, showed videos of the fasciculations one on thigh the other on foot. I had an intern doctor or student doctor check me out first and I explained my worries and I’m very grateful to have had my boyfriend come with me to this appointment for support. Anyways I mention all my concerns
- heaviness/tiredness in limbs (gets better after rest )
- aches in my limbs (gets better after rest) -fasciculations -urgency to pee/ peeing myself -tingling in hands -shortness of breath (mostly at night) -internal tremors -tremors in fingers (thumb & pinky ) -drooling
Afterwards she did a basic exam, and noticed I had hyper reflexes mainly on my right side, she made me do the test with my eyes closed and when she tapped my right knee both of my legs went up, she then had my toe and asked me if she was pointing my toe up or down, (again my eyes were closed) and when she got to my right foot I asked her if she was even touching my toe. After that she then grabbed the doctor and he did the test over again and mainly focused on my eyes again my right eye , I think checked them at least 5-6 times… I have no idea why but he is wanting an mri of my Brain and spine, plus blood work and cat scan. He told me that the fasciculations are probably nothing serious but told me to kinda disregard ALS because of my age. But does want to do other testing. I really wanted him to order a EMG but again he didn’t believe it was necessary. I hope I can find out what’s going on with me :/