u/Fairy_lux

▲ 2 r/POTS

How do you handle terrible episodes mentally?

I’ve had POTS bad enough to be mostly homebound for about two years now. Luckily severe episodes where I feel like I’m dying have lessened greatly, but I had one today where I got super hot and weak, that uncomfortable tingling feeling throughout my body, heart pounding and just feeling so terrible like I’m gonna die and I can’t even lift my head. I asked my partner to call 911 and he did. I’ve only called once before a year ago, and logically I know that I’m not dying, that POTS isn’t fatal, that there’s not much the ER can do for me, and that I’ll eventually be okay. But it just feels so awful in the moment like there’s no way I can get through it and that I need to go to the hospital. How do y’all get through it mentally when feeling so terrible?

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u/Fairy_lux — 7 days ago