I’ve always had “allergies and asthma”, honestly at this point I wonder if it was just MCAS my entire life. But anyways, I have been getting allergy shots for about 7 years. I had to switch practices 3 times due to doctors abruptly closing, so I only recently got to the maintenance because I kept having to start over. This last year I’ve started to have large localized reactions, never anaphylaxis, but I def would always feel very irritable the day I got it.
I just recently got diagnosed with MCAS. I think it’s been bad for the last year. I’ve had this complicated bilateral foot burning no one could figure out after a joint foot injury , scalp pain, neck pain, exercise intolerance- it all got slightly better with antihistamines and we figured it out. I just started cromolyn and about to start ketotifin.
My question is about allergy shots and everyone’s experience. Do you think it can help your allergy portion, or do you think it was contributing to your mast cell issues.
I’m starting to wonder if it has been adding fuel to the fire and if I should stop. Last week before starting cromolyn, I had my allergy shot, and then hours later I did some upper body PT exercises at home. Def didn’t break a sweat, they were just stabilizing exercises. Then I got super flushed, crazy headache, and had a flare that last 3 days. Migraine, feeling super hot, heart rate all over the place, felt like I had the flu, literally couldn’t get out of bed. Increase in all my joint pain. It kind of just hit me that maybe the allergy shots have been pushing me towards worsening MCAS. But at the same time I’m worried about totally stopping them because it took me so long to reach maintenance, and I do believe at one point they were helping me. But now I’m not so sure it’s a good idea to continue