I am just curious on how it is living or getting diagnosed with EDS but not having the typical hypermobiity or flexibility
I am not even sure on how the process looks nor do I want to get diagnosed It just something I am curious about as my joints feel so weak and pop and move around a lot but I am literally the most stiff body out of everyone I know
I am just asking so I can ask my doctor to rule it out
Hii I am wondering if anyone can share their experience/recommendations for EDS related doctors in MN ,I am looking for some but I am unsure which ones would be good
I saw this in my water bottle rubber ring I have tried soap and leaving it in hot water and tried using a mixture of baking soda
What else can i do?
Should I try putting it in a pot of boiling water to see what would happen ? Or vinegar?
Or should I just give up and get a new rubber ring for my water bottle?
Whenever I mention my issue being postural, the doctors check my blood pressure standing and sitting but i am curious for POTS or dystonomia is it supposed to be taken instantly after I stand up?
Because usually there is a small spike in bp, but they tell me that oh that is normal not a big difference and then make me sit down again and don't take any more bp teste and tell me oh you dont even quality for OH but i know from my own tests that if I wait 5 mins or 10 the difference is insanely dramatic
Is it normal to do it instantly after standing ? Or are the doctors misinformed and I should try to tell them to do it instantly and after a while