I’m wondering about questions you wish you had the answers to before the disease progressed and while your love one was still cognizant. Like, how and who do you want to handle care tasks as the disease progresses. Who do you want to handle your finances? If toileting becomes an issue, do you want family or nursing staff helping? At what point do you think it will become helpful to move into memory care? How much medical intervention do you want?
My mom is currently getting worked on for a likely Alzheimer’s diagnosis (PET scan positive in all regions with moderate-to-high amyloid plaque burden; typically seen in Alzheimer's disease), bloodwork positive for p-tau 217 and 181, plus many early symptoms). We find out next Friday.
We already have an elder care attorney that helped draft trusts and wills several years ago, so we will be reaching back out to her for legal guidance with this diagnosis.