u/Forward-Intention561

Hi!

Wondering if anyone on oral minoxidil alone had any success. I’m losing hair in my scalp, eyelashes, eyebrows, and in my nose. I was planning on starting a JAK inhibitor but my doctor said the side effects/ risks are really bad and talked me out of it.

She said to start with oral minoxidil, but the topical minoxidil never did much. Has anyone had success with it?

Also, I can’t have any steroids so my treatment options are limited. Unfortunately the itching is so bad too and that would have helped.

Thanks so much!!

Hi everyone,

I’ve had alopecia areata on and off for 16 years. It usually flares up when I’m on too much Synthroid for thyroid replacement therapy. I noticed this time around that instead of just my hair being affected, I’m losing my eyebrows, lashes, and nose hairs.

The shed is really rapid too. I woke up with the inner corner of my eyebrow gone today. And the lashes are very patchy in about a week.

Is this typical? I’m not on any treatment but with how quickly everything is happening, I want to go on a JAK inhibitor. I’m afraid of the side effects though. If anyone is on a JAK, what has your experience been?

Thanks so much 💜

Hi everyone,

Does anyone else get petechiae? I randomly got a bunch in one day on my thighs and I’m wondering if anyone else experiences this?

Thanks!