r/alopecia_areata

Image 1 — Has anyone made a recovery from this extent of hair loss without drugs?
Image 2 — Has anyone made a recovery from this extent of hair loss without drugs?
Image 3 — Has anyone made a recovery from this extent of hair loss without drugs?
Image 4 — Has anyone made a recovery from this extent of hair loss without drugs?

Has anyone made a recovery from this extent of hair loss without drugs?

Finally feeling like this is it and I'll always be bald from here on out unless I decide to take the drugs.
Has anyone loss this much and made a recovery without jak inhibitors? For context I’m currently pregnant and planning on breastfeeding and do not plan on changing those plans in order to take jak inhibitors or any other systemic drugs. Trying to have some hope that maybe I could make a recovery even though I can’t take any medications for then next few years.

u/Ok_Bluebird_2522 — 12 hours ago

Alopecia has held me back so much

My alopecia started when i was in elementary/middle school, my mom believed that oils and creams would bring my hair back and I fell into that hope too but as time went on nothing grew back and it kept me confined to one hairstyle that covers it when gelled down, while everyone else was changing hairstyles and trying new things I felt like I couldnt explore/try out new versions of myself. Whenever someone liked me I felt like if they had know I had alopecia they wouldnt like me anymore/when i did go out with someone they had asked me why i never change my hair/it always stays the same which sucked to hear. My mom did my hair for me everyday which also kept me confined because I couldnt just walk out the door when I wanted to, everything would be on her timing, which means anything I wanted to do didnt happen/got delayed. I was scared to branch out and possibly go to a four year college in another state because i didnt know how to do my hair and wouldn’t be able to look presentable as well as my mom kept saying I should stay in state close to her. I feel like my life would have been different without alopecia, I honestly would have gotten away from my family, but anytime i try to do anything on my own my mom is always bringing up the worst that could happen and wanting to go with me. As of right now im trying to learn how to do my curly hair on my own, but my alopecia seems to be genetic, since a couple of my other siblings have it in the same spot. Honestly im just tired, so tired of not having any versatility with my hair. Im trying to branch out more and remind myself that hair isnt all/i can still do plenty of things in life without hair, but then i see all these beautiful natural hairstyles i would have done if i had all my hair and it just makes me sad all over again.

reddit.com
u/mistymiyako — 9 hours ago

Hope

I just want to give everyone hope. It is possible to get cured from AA. I was diagnosed in march, and this is how it is looking today. I am not fully cured yet, but my derm told me I’m on the right path.

has anyone regretted minoxidil

i’ve had this since 3rd grade and i really need a change cause its my biggest insecurity

i could either shave it or use minoxidil

but i’m 17 and i feel like i shouldn’t mess with “unnecessary” things that can affect my health

last time i talked to my doc abt it he said i shouldn’t bc my health wasn’t that good at the time but im better now

im just scared to ask bc last time i asked and he said no i cried and ive cried multiple times bc of him - im scared of him

reddit.com
u/teehae — 2 days ago

Sharing so I don’t feel so alone.

This is my last large bald spot since I started getting treatment (kenalog injections every 6 weeks) in Nov 2025. This was taken just last week (June 2026). I am getting married in September 2026 and I’m so insecure about this but luckily this spot in particular is easily hidden with hair fibres and styling.

I started off with a lot of spots and chunks of hair falling out in March 2025 due to stress from work and overall poor health choices (vaping nicotine, smoking weed and bad diet)

I stopped vaping nicotine and smoking weed from Jan 2026-May 2026. The spots got better but then my acne started flaring up and my skin was an absolute shit show. Started vaping nicotine (haven’t gone back to weed) again and now my skin is much better but just found a small nickel sized bald spot on the side of my scalp (prob due to smoking again + stress from wedding planning).

Anyways, not sure why I’m posting or if anyone’s reading. Just wanted to share my story. Thanks if you’ve made it this far. We’re all in this together.

u/Agitated_Two3196 — 2 days ago
▲ 3 r/alopecia_areata+2 crossposts

Hey guys what kind of Hairloss is this?

I went to get a Blood Test because I thought it’s some nutrition problem but everything is perfect.

I’m on oral minoxidil and Finasteride and it’s getting worse since months now. I don’t know what to do anymore tbh.

I'm 17, is this alopecia

I'm 17 and have never noticed anything like this before. I first noticed it 4-5 weeks ago and thought my barber fucked it up, turns out they look like bald patches and are not the fault of my barber. They are roughly 5 mm and there's a few of them. Maybe it could be some sort of fungal infection that I had not noticed, and has scarred? Any advice?

u/Suspicious_Goal_4299 — 2 days ago

First Regrowth Journey

I was recently asked about my alopecia journey and I ended up creating this to really put my whole regrowth journey into prospective. *I know everyones onset, severity, healing process is different and I am only sharing mine.* I was never officially diagnosed or prescribed medication.

After first discovering the patch I thought it was anything but alopecia as I've never seen it around me or never felt "bad" in anyway for it to happen. However, I did buy minoxidil and started the routine of giving it some attention and TLC.

Around 3 months in, an acupuncturist friend of mine was visiting and told me about these capsicum patches he uses on himself…for acupressure. He told me to use them on "ST36" to help with stress reduction and gut health. I got that exact brand off of Amazon, cut the patches into pieces small enough for that area and used these everyday on that pressure point on both legs. There is no way to tell if it did the trick but I did get results.

At that time I was also using minoxidil twice a day and really trying to reduce my stress by journaling and accepting that this was happening to warn me about bottling things up, so it could be any of those things or a combination of all or just how my alopecia decided to run its course.

I do experience flair ups around may, and stick to the minoxidil and they seem to go away by August/ September. I'ma middle school teacher so I thought it was literal end of the year stress bottling up.

Anyone have similar experiences or have used acupuncture/ pressure to help?

u/NandoMcNandoson — 2 days ago

6 months on Litfulo

I’ve been on Litfulo for 6 months. I was at 100% loss on my scalp, eyebrows and about 50% on my lashes. In my first month, I started seeing regrowth on my lashes. By month 3 I had full growth and pigment back on one. Had some shedding on my other but quickly replaced with little grey hairs. Still around month three I stayed noticing regrowth with my eyebrows. Now around nearing month 7 I am starting to see pigment coming back. Back tracking just a bit, month 4 I noticed small grey little patches on my scalp. Not long after pigment in my hair came back very noticeable. I am at about 60% growth on my scalp alone and over all happy with my progress. Just wanted to share my update!

reddit.com
u/CryNarrow6446 — 3 days ago

Alopecia Areata 5 year old

I'm kind of looking for some advice and possible answers. My 5 year old daughter has a couple of random bald spots that started appearing on her head over the course of the last couple of weeks. I fear it might be alopecia areata. I do have a doctor's appointment in a couple of weeks, but until that time I'm trying to find some answers on my own. Considering the fact everyone on this reddit has experience with AA I was wondering if you could give me some tentative insights into her spots and some honest opinions. Not looking for a diagnosis, just honest opinions of those who have it themselves. Thanks in advance <3

u/St0riesWeTell — 3 days ago

Dating with Alopecia Totalis: Does the Fear Ever Go Away?

I could really use some perspective from people who’ve been in a similar situation.
I’m talking to a guy who honestly checks every box for me, and then some. We met on a dating app, we’re long-distance, and things have been going really well. During the first week, I told him I have alopecia totalis. I don’t have hair, eyebrows, or eyelashes. He was incredibly kind about it and said it wasn’t an issue because he felt we had a genuine connection.
His response reassured me, but I’m still scared.
I’ve never been in a real relationship before, and I keep wondering what it’s actually like for people with alopecia or similar conditions to be in one.
One thing I can’t stop thinking about is the little everyday moments. I love wearing makeup, and it gives my face more contrast. Without it, I don’t think I look ugly, but I do feel like I look unwell, which makes sense given my condition. I’m nervous about things like waking up next to someone for the first time with no makeup, no eyebrows, no lashes..just me.
How did you navigate those fears? Did they ever go away? If you’re the partner of someone with alopecia, what was your experience like? And for anyone who has a visible condition, how did you learn to feel comfortable being fully seen by someone you cared about?
I’d really appreciate honest experiences, whether they’re encouraging or challenging. I just want to know what real life looks like.

reddit.com
u/Sad-News3530 — 3 days ago
▲ 5 r/alopecia_areata+1 crossposts

Xeljanz medication for alopecia universalis?

I have alopecia universalis since i was 3 i was told i need to use xeljanz first for a period if 3 months but its unlikely/difficult to regrow because its been 20 years now but after many reasearch i heard olumniant is so far the best for my alopecia

reddit.com
u/Useful_Fortune9992 — 3 days ago

Alopecia areata - female

Three years ago I had my beautiful little baby girl. Two years ago I had a heterotopic pregnancy (both a normal pregnancy and an ectopic pregnancy at the same time) and had a missed miscarriage at 8wks pregnant. This absolutely shattered me. I was devastated. For a very long time I would wake up at night and cry my eyes out. 6 months after that event I got my first bald patch on the back of my head. Within 3 months I experienced such a hair loss that I had to shave my hair. I had patches EVERYWHERE. I did struggle with dermatitis on my scalp previously too. I had blood tests, hormone tests and thyroid check up but everything came back normal. After I shaved my head some of the patches did grow back. Now I am to a pixie cut length but new patches started forming and behind my ears my hair never grew back. And I mean they are really massive patches. It took me 12 months to see a dermatologist on the NHS and three weeks ago I was prescribed an ointment and pills. I am mortified my hair won’t grow back. I genuinely feel tired of wearing head scarves and feeling like an alien. I catch myself staring at other women’s hair and admiring it. I don’t understand why this is happening, is it stress related. Can it be healed? Any thoughts from anyone?

reddit.com
u/mrs-trees — 3 days ago

Does this look like potential regrowth? (Update)

So last week I posted a picture of my patch. I’ve had it for somewhere around 4-8 weeks. I hadn’t previously noticed it when I went to get my hair done at the end of May. Then found it at the start of June. I’ve been taking pictures every week, simultaneously trying to put it to the back of my mind so as not to stress too much. Long wait to see a dermatologist but in the meantime have been prescribed iron tablets for borderline levels. Been caring for my hair with caffeine shampoo (mostly due to dandruff that increased recently).
Last night I took another photo (hard to see myself because of where the patch is) but comparing the two photos, does this look better?

I appreciate the photos have different lighting, hair parting etc. but it is genuinely difficult for me to try and get the same angle, conditions etc every time. I’m not so much focused on the surrounding hair but the centre of the patch. Does anyone see anything? Tia

u/KoalaEnvironmental95 — 4 days ago

18 months on Litfulo an update.

I posted after one month and meant to post at a year and forgot! Me- diagnosed Alopecia Areata with a SALT score of 100 and now after 18 months on Litfulo (with some support of clobetasol and minoxidil after a flare) my SALT score is 5! My bloodwork continues to be normal and I don’t have any side effects. Enjoy my first ponytail in over two years and forgive the headshot but I still don’t take many photos of myself day to day cause the alopecia insecurity is real!

u/Lauren_Adams — 4 days ago

JAK inhibitors

I’ve had alopecia areata for the last 5 years and it only seems to be getting worse. Steroid infections aren’t helping as much as they used to.
I was wondering, how safe and how effective are jak inhibitors? Are there any side effects? Thank you

reddit.com
u/PutridMedium1674 — 4 days ago

Alopecia white hairs

This Is my regrowth after taking the treatment for 6 months it possible that these white hairs will turn black again

Or what should i eat/do which will help in turning them black please advise

The golden hairs are because of the serum i was using but i have stopped using that 😅

u/Straight_Football_11 — 5 days ago