I’m hoping to hear some success stories from people who have had long term Lyme. I’ve had it for over ten years and am concerned it’s too late to treat. My symptoms include brain fog, fatigue, numbness in hands and feet, burning mouth, lots of hair loss, neck pain and arthritis, jaw popping, anxiety, depression, etc. would appreciate any response.
Has anyone’s AA been triggered by Lyme disease? Curious if if has and if so, did AA get better once Lyme was treated?
I’ve been dealing with symptoms for years not knowing what was going on. Seeing endless specialists and finally got the answer of Lyme. I’m having hair loss, brain fog, fatigue, numbness in hands and feet, burning in mouth, body pain, muscle tightness and popping in neck and jaw.
My symptoms keep getting more intense and I’m concerned even with treatment, because it’s been years, things won’t get better. Any advice of what I should do or your thoughts on if I can start to feel better would be really appreciate. Thank you!
My derm seems to think olumiant is more dangerous but more effective than Litfulo but recommends I go on it anyway. How dangerous is it? I don’t want to start it if it’s going to cause even more issues. Any advice is appreciated!
I had mono back in high school and I haven’t felt right since. Very tired, lethargic, brain fog, and now autoimmune issues. Alopecia areata is all I know of so far. What are the symptoms you experience and what has helped you feel better?
Where is the best place in the area to get guitar lessons? I’ve been playing for awhile, but I’m only self taught. Would like to learn more about guitar and music theory.
Does anyone have recommendations for dentists or orthodontist in the area? Thank you
My dermatologist mentioned Olumiant as an option for my AA, but I am concerned. Would love to hear success stories / your experience on the medication. What should I be aware of before starting it?
I’ve had alopecia areata for the last 5 years and it only seems to be getting worse. Steroid infections aren’t helping as much as they used to.
I was wondering, how safe and how effective are jak inhibitors? Are there any side effects? Thank you
Back in January I had my B12 tested after symptoms of numbness in hands feet face and mouth, hair loss, fatigue, brain fog, etc. and my level was 218. I’ve been supplementing with injections once a week and my doctor thinks I may be getting too much now. My level went up very quickly after supplementing. How much is too much B12 and how do you prevent that?
Also, when do you start to see improvements on symptoms when your levels seem to get normal?
I had a b12 of 218 and homocysteine of 14.4 back in January. As soon as I started supplements, the hair loss got so much worse. I’ve had this for years though. I’m not sure if the hair loss in being caused by low b12, lupus, or alopecia areata. Any advice would be appreciated. Thank you!
Does anyone else experience hand swelling when in the sun for too long?
My PA says I’m not deficient in b12 and don’t need injections. I’m on sublinguals right now and I’m wondering if that’s enough.
My b12 was 218 before starting supplements and homocysteine 14.4. I’m experiencing neurological symptoms of numbness in hands, feet, face, mouth, brain fog, fatigue, hair loss. What can I do to get injections if I need them?
Does having a positive anti C1q mean I definitely have sle? My anti dsDNA and anti smith are both negative. Don’t have any morning stiffness, no butterfly rash. Have a history of autoimmune with alopecia areata. I have low B12 of 218. And high homocysteine of 14.4. I’ve been having hair loss, numbness in hands, feet, face, and mouth, brain fog, fatigue. I’ve been on hydroxychloroquine for 9 months and it hasn’t helped what was believed to have been sle. Is it possible I have a b12 deficiency and it’s getting mistaken for sle?
Both tests came back negative but I have symptoms. Numbness in hands, feet, face, lips and mouth, hair loss, brain fog, fatigue. B12 was 218 homocysteine 14.4. I also have history of autoimmune issues with alopecia areata. Questioning if I have lupus or if my symptoms are from a b12 deficiency, but both of those tests coming back negative is making me question it. Any thoughts?
Feeling pretty discouraged after today. I’ve been dealing with numbness in hands, feet, and mouth, hair loss, fatigue, brain fog, etc. My b12 is at 218, homocysteine is 14.4. I thought I finally found the issue, but my intrinsic factor came back negative. Any thoughts?