r/EBV

This is my first time with mono I caught it 3 months ago but yet I still have it, it seems for months now, I’ve been getting sick over and over again, sore throat, severe diarrhea, body aches, chills, tachycardia, complete loss of motivation, fatigue that comes and goes, now I’m starting to become irritable because I’m just getting sick over and over again. I can no longer go to the gym because I’m constantly sick it’s like I keep catching it over and over again. There’s some points where I feel a little better but not fully recovered. Someone gave me HSV1 and mono in the same month. and I’ve been so sick ever since, and it’s starting to drive me crazy. I don’t know if I have some post illness syndrome or what I need to do. I can’t afford hundreds and hundreds of dollars for a naturopathic doctor, so I don’t know what to do because obviously something’s wrong because my immune system just will not stop. I am getting sick over and over and over again.

So I’ve got mono when I was in high school. Fast forward I tested positive for EBV 2 times again after that. I would get vitamin c iv fluids and it would go away after a few months. Now I’m a junior in college and this past summer I was running alot and I’ve always been super active, I was doing pretty good. I slowly started to just get super fatigued after my runs and felt so exhausted the next days. I went to Europe in July and I was insanely exhausted I genuinely felt bed bound. I felt very lightheaded too and dizzy. Anytime I would do any form of exercise I would feel 10x worse and would have to rest. My heart rate was constantly very elevated and I was seeing eye floaters. Went to the doctors and my EBV VCA IGG was a 110 but everything else was normal. Now I’m in school and it’s still there. I have eye floaters every single day and I’m so exhausted I could just lay in bed all day and still be exhausted. On the days where I get more steps in (I have to walk to class) the next day I’m genuinely wiped. This is debilitating and I feel so depressed, my doctor offered myers cocktail iv it’s just so expensive.

I have a virus (suspected EBV). Fatigue and malaise shave stopped but I developed some vascular pain at some point and it has now moved throughout my body and is having a knock on effect on nerves. my blood vessels are very prominent and blue and painful. I'm told it isn't vasculitis. All my inflammatory markers are normal. I suspect neuroinflammation or endothelial inflammation.

Exertion flares it (it's much better with rest) and I am in agony. Nobody can figure out what to do with me.

Has anyone had a similar experience? what was it?

I was finally diagnosed with glandular fever in august i havent had any issues with tiredness this whole time but halfway through today i got really tired im worried this is cfs is this common if you have done alot

My fatigue, body aches, malaise, nausea have all lifted. Now just dealing with vascular pain in legs and arms and some associated neuropathy (which seems to be linked to overdoing it while having the vein pain).

Does this suggest it's been suppressed and these are mostly post viral in nature?

Every time I get a reactivation over the last four years, I have just as much lightheadedness as fatigue. It’s not dizziness, as nothing is spinning, it’s this non painful intense “fullness” in my head, especially the front near the forehead. I had heard someone in a forum at some point describe it as their head feeling full of cotton and it was spot on. Does anyone else get this with their EBV?