r/EBV

Three months ago I made this thread here:

GP and specialist says EBV reactivation is highly unlikely. Any comments? : r/EBV

Three months later I'm still not well. After recovering from the sinus infection in April I've been catching cold after cold. Getting back to the gym for a brief while and then having to quit as I get ill again. Felt I was getting better a few days ago, but new cold yesterday.

I think the main argument against EBV reactivation (not that I fully understand how that works) is that I'm not incredibly fatigued...

Any ideas? How is EBV reactivation diagnosed in the US or other countries? In Norway, consensus seems to be that it's so unlikely to happen that you just don't have it. Period.

Hello, every time i take 1000mg monolaurin, i'm crashing hard a few hours after, like, irrepressible fatigue impossible to jugulate, coma nap forced to lay down type of fatigue, there's no way i'm staying awake, and when i wake up, i feel like shit.
Anyone else?

I am only making this post because when chronic EBV was put on the table, I came to reddit and no one had answers from their medical professionals either. And I think my doctor is really helping.

I am currently being treated for what we believe is chronic EBV. I had a positive diagnosis as a child, have had a clean bill of health whilst exhausted and fatigued for 8 years. I am 32f and finally asked they test me for mono in May 2026 as a last ditch effort to get answers. I was very infected to say the least 😂

The medical doctors did and as of this week, still do not know what to do so back in May I went to see a naturopath in Hermiston, OR called Dr. Kris Petersen.

First three months he gave me two supplements:

Lauricidin - one scoop 3x a day. This supplement helps thin the lipid layer of the virus so the body can more effectively attack the virus.

N-Acetyl-L-Cysteine (NAC) by Designs for Health - one 2x a day. Basically helps slough all the viral die off out, a detoxer.

Over the months I would notice if i miss the Lauricidin, like it actually helps me get through the day, but the NAC didnt feel like it did much.

I just saw him last week again, we kept me on the Lauricidin, took me off the NAC, and he did a bunch of tests and then landed on Reishi Gano 161 by JHS Natural Products. I have been taking two 2x a day.

It is slow going because its mono, but the combination of reishi with the lauricidin has me feeling better than ive felt in years. The medical doctors told me they don't have anything for me and they don't think infectious disease will take me. They literally said, "there is so much we dont know, if youre having results with the naturopath, do that!"

I will of course update as we continue, but I wanted to give you guys some hope because its truly miserable to live with it. I only give the brand names of the supplements because he has high grade ones and Ive gotten sick from Amazon supplements before!

Any questions are welcome!

Hi all,

Had mono on may, but I´m still experiencing lingering throat pain that comes and goes.

Has anybody has had any success trying to vanish the throat pain? Any tips?

My doctor has not been very helpful really.

Wishing you health and wellbeing!

Guess this confirms it...

I had EBV about 4,5 months ago and I was pretty sick for 3-4 weeks from it. After 4 weeks I felt better and went back to work. I didn't feel extremely tired, but now after 4,5 months I'm starting to feel a bit more fatigued again.

I don't feel like the EBV has been reactivated or anything. I don't have any swollen lymph nodes anymore, except for one in my neck. And it's that one, including the returning tiredness, that I'm worried about.

The lymph node is hard, it doesn't move and doesn't hurt. Its about 1-2 cm (my best guess) and its only on the right side behind my ear. Its below my skull but at the top of my neck if that makes sense.

Should I get this checked out or am I just being dramatic?

It's been there for at least 2 months and hasnt grown much since then, but because I'm getting tired again, and am starting to sweat more at night even now when its getting colder again, I'm getting a bit worried 😅

Hi all,

I'm new here and mainly wanted to share something that has helped me a lot: Inosine Pranobex.

No prescription is needed if bought in Poland (I purchase it at an online pharmacy) and it is incredibly cheap there compared to where I live.

It completely took away the very frequent flu-like symptoms and most of my insomnia that prior to taking it, made my life really hard.

I have no side effects whatsoever (and I don't tolerate medication well usually..even Ibuprofen).

I know another person that has a very similar experience: no side effects and huge stabilizing effect.

Hope it helps many others as well!

Hello:) I'm on month 5 of EBV infection, otherwise healthy 27 year old. I had good months at month 3 and 4 and did some travel and walking which maybe was too much. Anyways the below has been my liver enzyme pattern throughout the past couple months, I got sick in Feb, the enzymes started to peak later on. Next week will be 6 months. My ANA is negative, ASMA 1:40 low positive titer, IGg normal- so my bloodwork seems "negative" for autoimmune hepatitis. Anyone else have prolonged elevations in AST/ALT throughout mono/ebv?

5/7 — 107 / 251
5/18 — 76 / 246
5/27 — 73 / 153
6/10 — 80 / 183
7/6 — 121 / 326
7/13 — 79 / 251
7/20 — 39 / 121
7/28 — 72 / 177

8/13 - 62/223

Does anyone else get this weird internal shaking/trembling feeling after being active or doing more than your body can handle?
It’s not necessarily visible from the outside, but inside my whole body feels shaky, almost like it’s vibrating. I can also feel weak, overheated and a bit unsteady when standing. It seems to happen especially after I’ve pushed myself too much that day, and lying down and resting is usually the only thing that helps.
Has anyone else experienced something similar, especially with post-viral fatigue or dysautonomia?

Ugh. Need to vent, please bear with me.
After a long haul being out of work on disability for almost a year, I found a fully remote job. I was doing okay since starting in early April. Now, things have hit the fan! Out sick today, starting slipping earlier in the week until yesterday, just sitting up
Felt too much, low grade fever, chills, no appetite.
Went to urgent care - flu and COVID ruled out. They’re guessing UTI. I don’t think so.

Today I signed up with a functional care telehealth practice. I can not go on like this - I need to work AND, need to be able to do more than just work. I’ve declined so many social engagements, including with my own dear children.

Call it what you want : long covid; CFS? I don’t really care . It stinks. It started last August with reactivated EBV, then I got the flu, and on the heals of flu , COVID.

Hi hi my fellow EBV-ers!! Has anyone had any success with seeing an immunologist?
I have had chronic EBV since 2000 and have recurrent active EBV 6-8 times a year.
Infectious disease won’t see me until I’m basically dying.

This is more evidence that many of us who have the immune signatures of EBV reactivation in the past few years are experiencing this from Long COVID.

Good afternoon everyone, are this Symptoms of EBV:

Throat Tightness
Fatigue
Trouble swallowing
Nausea
Wanting to Vomit but can’t
Bloating
Malaise
Can’t tolerate heat
Can’t have full meals
Sharp pain like a needle in back of throat
Back of head pain/Inflammation
Wake up everyday at 3am
Super sensitive gag reflex
Dry heaving
Thick phlegm when eating
Super slow digestion
Constipation
Systemic inflammation
White/grey flashes in the corner of eyes
Floaters
Burning skin sensation
Weight lost due to not eating enough food

Does EBV make your gag reflex hyper active? Like non stop? Does it also give you shortness of breath?

" A new study suggests that COVID-19 may reactivate dormant viruses already hiding in the body.

That process, researchers say, is linked to more severe illness and may contribute to lingering symptoms such as fatigue associated with long COVID.

The study, published Wednesday in Nature, took more than 1,100 samples from the first year of the pandemic.

Researchers found that nearly half experienced the reactivation of viruses they had previously been carrying without symptoms, including members of the herpesvirus family and a group of common viruses known as anelloviruses."

Hi all. I’ve been battling with gut issues for almost 2 years now. First, methane SIBO, then a c.diff infection, and now severe dysbiosis and degraded mucus layer.

I also have reactivated EBV and hashimotos disease. Fun!!!

I’m wondering if anyone treated EBV while also having gut issues? What were you prescribed? Any side effects like constipation?

I feel hungover every day despite not being a drinker. I am so dizzy when I stand up that I have to grab a chair and steady myself before walking.

I just want to feel better but I worry my doctor wants to wait until I’ve made progress in my gut treatment before treating EBV.

I see a lot of posts from people begging for a cure or remedy due to the debilitating side effects of EBV. I have come to share my story with hopes that others will find the same success I did. Before reading this you need to ask yourself “what am I willing to do to feel better?” My answer was “literally anything. Whatever it takes.” If that’s your answer and you believe you have that kind of will power then keep reading. With that being said, your health is in your hands. You’re able to heal yourself without the standard pharmaceutical pill. You can do it.

Backstory: Contracted EBV in 2024. Symptoms included extreme fatigue, head ache, random muscle spasms and aches, heart palpitations, inflammation throughout entire body, brain fog and abdominal pain. It also caused my TPO antibodies to sky rocket and attack my thyroid which lead to a hashimotos diagnosis. It was life changing and felt like it would never end.

Turning Point: The virus kept running its course on me with little relent before I found a local holistic health mentor. Her plan focused on reducing inflammation in the body and rebuilding the gut. It was a tough plan that went against everything the American diet pushes on you. I went on a fairly strict keto diet (<20 carbs/day) for 6 months with the addition of natural supplements like vitamin B,C, D3, K2, cod liver oil and others that were targeted toward healing my gut. All supplements were based on my blood lab results. Her approach was not so much targeted toward EBV as it was just a completely lifestyle overhaul.

The focus:
-Reducing inflammation
-Cutting out processed foods and sugar -Following a dietary formula of high fats, moderate protein and low carbs
-Detox: sauna, monitoring bowel movement frequency
-Eating as much organic food as possible
-Set an eating window: I don’t eat a thing after 7pm
-scheduled fasting: usually 24hr hour period every 2 weeks but working to increase that

Results: I started seeing positive results within a few months of starting my lifestyle change and kicked the virus to the curb completely within about 6-7 months. Although not the goal, I also lost 19 lbs in the first month due to the diet change. My heart palpitations subsided. My endocrinologist said my TPO antibodies would never come down. She was wrong. They’ve started to decrease. I run circles around my young kids now. My energy and mental clarity are at all time highs. My sleep quality couldn’t be better. It truly was a life transformation and I didn’t need a doctor or pill to do it. It’s amazing what the human body can do. Your body is a very resilient self-healing machine. It just needs the proper resources to function as designed. Unfortunately the standard American lifestyle doesn’t provide it.

Bottom Line: You can do this. It’s tough but being sick for years is a lot tougher. My advice: pick 1 thing and start with that for a few weeks or months. Once you’ve gotten it down. Move on to another. I personally think cutting carbs was my biggest helper with cutting inflammation and thus the virus. I “went to school” on diet and how the body reacts to certain foods. Deep diving into this helped me stay motivated and invested to keep the course. I used to eat fast food without blinking an eye. Now I care about what the cow ate before it reaches my plate. What I once saw as a life changing diagnosis is now a blessing. I’m thankful for catching EBV because of the life change it forced me to make. I can now pass this new lifestyle down to my kids and teach them how to eat and give the body what it needs.

I hope this helps somebody to make the changes required to kick this virus.