u/Logical-Horse-6413

Does anyone have any leads on doctors in Maryland that can help with EBV-associated CFS? I'm willing to travel and pay out of pocket.

The doctors I've found here for the area are either child or young adult specific (I'm 42), retired, or have active disciplinary actions.

My history is 27 years of sickness (since I had mono at 15) and lymphoma survivor (a type with known EBV association). An ID doctor flagged my abnormal EBV blood work (IGG EA beyond reference range for many years) but he doesn't specialize in EBV. My oncologist thinks the bloodwork isn't significant since my PCR is negative but I beg to differ. And I've been to 2 naturopaths with bad experiences. I worry an ID doctor I have ID'd in Baltimore will dismiss me based on a negative PCR but will try - I'm not sure ID is the right specialty. I have a neurologist appt scheduled but it's a ways off and I have no idea if they're knowledgeable or it will be another disappointment visit. I recently got valtrex through my PCP and it's been very helpful, but they're uncomfortable with a high dose for a long time. Seeing other people's posts on their experiences is also discouraging. I just made the CFS association after all this time and very rough journey, on my own.

Thank you

I went to leave a review, which I very rarely do, and was surprised to see that I'm banned! I contacted customer service over the phone and they said one be reached out to - they didn't. I followed up on chat and same thing.

I believe my last review that caused this issue was for the Cumrige Self-Cleaning Litter Box. I posted it and never recieved a response that it was live.

If you're considering that litter box, please do not do it unless you want your cat using the bathroom all over your home.

It malfunctioned constantly within the first couple months, the app was terrible, the touchpad doesn't serve a purpose, and the customer service while responsive within 24 hours (over WhatsApp, which is new and different) pointed me to various YouTube videos to try to fix all the different error messages I encountered - with the last one requiring me to disassemble the entire box with 12 screws and adjust the wires that were taped inside (terribly cheap engineering) so that sensors that never lined up appropriately lined up, and it still didn't work. I had to use an external infrared sensor from my blink camera aimed at a little hole to manually get the box to cycle, which I learned from another customer with the same issues who made a YouTube video about his work around. Their customers are making videos on how to deal with their product's issues.

This makes me think their reviewing system is not honest and I'm surprised and disappointed they've resorted to lying to their customers who inquire about it.

Walmart app, here I come!