u/Frequent_Number6155

▲ 7 r/ALS

Trach

Hello , my Dad just got a trach and vent on Monday . Today he has been gurgling loudly and panicking. we can’t seem to suction any of it out , which i think is scaring him more . Has anyone experienced this ? Does it get better ? How can i make him more comfortable? We are in the hospital still and the nurses haven’t been the best at being there to help us and talk to us . We are exhausted, overwhelmed, and frankly terrified of the future :/

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u/Frequent_Number6155 — 1 day ago
▲ 11 r/ALS

Hello , my father has had ALS for 7 years now . He’s in the hospital and most likely will be sent home on a trach eventually. My worry is we have been looking for nursing care for years. YEARS . Multiple agencies, only paying around $10 , can’t get in touch with anyone . What can we do to find him a nurse bc i know he will need one . He is on CCW insurance , which is what we were told he had to be on due to his ALS but we hear nothing . My stepmom is reaching her breaking point , me and my sister both work full time with bills. I don’t think she can handle this alone , and i am honestly lost . Seeking any advice !! Thanks !

reddit.com
u/Frequent_Number6155 — 16 days ago