Newly diagnosed and at my wits end!
End of May I was put on amoxicillin for a sinus infection. After finishing I didn’t get any better so I was put on augmentin, I wasn’t improving so they did another round. I started to develop horrible cramping, almost passed out from the pain, and diarrhea where I was just putting out tissue and blood. I came back positive for cdiff a few days later after being misdiagnosed as gastritis at the ER….
I started dificid on Monday night and experienced over 5 days of constipation due to taking Bentyl for my cramps. Now my diarrhea is back and my cramps are worse. I can’t do anything, go anywhere, I haven’t even worked in weeks. This is NO way to live and I’m constantly upset and anxious. I’m at my wits end and I don’t know what to do. I saw my GI yesterday and she just told me to finish the meds and if I continue to have diarrhea I need a fecal transplant, and I’ll be on pre and probiotics the rest of my life. I’m deathly scared of recurrence, I have IBS so how am I going to know what is cdiff and what isn’t?! I ask my doctors and they just have no answers. Aren’t there clinical trials using immunotherapy now? Isn’t there another option? Please give me any advice to get through this! Thank you so much!
Edit: also, does anyone else feel like a leper? I am so afraid to get someone sick (I’m a nurse and I know how it spreads so I am so scared) even with careful handwashing. I don’t want to be in public or do anything cause I’m scared that I’ll have cramping and diarrhea and then I could possibly spread it.