r/cdifficile

â–˛ 1 r/cdifficile

I am so scared I will relapse

It’s been two weeks since I have been done with difffixid then a 7 day vanco taper I just started having some clear mucus when I pass gas …I am so afraid this is the start of a relapse ..I have had no diarrhea..yet
Please help

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u/Fit_Advance_3873 — 14 hours ago
â–˛ 1 r/cdifficile

Why are drs like this?

I’m on day 6 of 10 of 450 Clindamycin. I went down to 300 because 450 was making me too nauseous. I’m having soft stools, cramps, bad tenderness to where pants and underwear hurt, nausea, and back pain but the er said they can’t test for it until it’s fully liquid and that I’m not going enough for it to be c diff. 6 times a day they said isn’t severe enough.

Also my stools aren’t crazy strong smelling but they now smell like horse poop. That’s really what’s worrying me along with pain.

They told me to finish my antibiotic. Also they gave me a zofran prescription. If I do have c diff is this safe?

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u/Accomplished_Rub7034 — 1 day ago
â–˛ 2 r/cdifficile

Post Cdiff and Hpylori

Has anyone here had H pylori after having Cdiff? ive been cdiff free about a year now but thinking i have h pylori from symptoms so getting tested soon for it. If you have, what were your symptoms and how did you do on the antibiotics? scared to face another stomach infection and more antibiotics that could cause cdiff again on TOP of h pylori if thats what im having. thanks!

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u/No_Music_1774 — 1 day ago
â–˛ 4 r/cdifficile

I can't keep doing this

I was diagnosed with cdiff on 7/23, ended up in the ER three times. Prescribed Vancomycin 10 day course, symptoms resolved, finished it.

10 days after finishing Vancomycin, my symptoms came back. My doctor sent me to the ER for fluids, meds, and testing. Was obviously positive for cdiff again. They tried to rx fidaxomicin, but medicaid wouldn't cover. Sent home on Vancomycin taper this time. My symptoms have gotten worse since starting the Vancomycin 4 days ago. I'm having bad abdominal pain again, passing hard round balls of stool mixed with bloody mucus. The pain has been bad for the last 18 hours, keeping me from eating, drinking, but I have been forcing myself to take the antibiotics and some daily meds.

I spoke with my doctor's office this morning, and she wants me to go to the ER again. This will be my 5th time in the ER in the last month. My fiancé is at work and not answering his phone, so I am going to have put off going to the hospital until tonight.

I just discovered this sub and have been researching what not to do.

Apparently I'm not supposed to take pantoprazole, but no one told me this. I take it regularly everyday.

I was also told that since I'm taking naltrexone (for appetite and food cravings), they can't give me IV opioids for the pain at the hospital. I stopped taking it during my first infection, but stupidly restarted it when I was feeling better. It didn't occur to me to stop taking it with this infection, since symptoms were supposed to improve, and I'm a complete idiot and took it last night. So no pain meds for me! I also can't take NSAIDs since my gastric sleeve surgery.

I am glad that I have medicaid right now, or we would have no money at all after these bills.

But I'm exhausted. Didn't sleep at all last night. So much pain. So thirsty.

I'm tempted to not go back to the hospital. I feel like the staff is getting tired of seeing me, and it's making me feel so guilty and embarrassed. I know my doctor wants me to go, but I feel like my fiancé is getting so stressed out dealing with me. He's at work right now, not answering.

I'm just so done with this. I can't take this on top of my usual pain. I don't know what to do anymore. I'm so tired.

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u/Lazybetch — 2 days ago
â–˛ 2 r/cdifficile

Fasting Diarrhea after Vancomycin

I had C Diff and took vanco back in April so it's been 4 months. My symptoms have gotten better and I'm toxin negative. however the biggest issue now is I only get symptoms when I don't eat...then I get really bad diarrhea. If I do eat then I am fine and have normal stools and feel good.

My C diff was very mild (was actually misdiagnosed as IBS for several months) and when I had that I was able to fast without issues. It wasn't until I took the vanco this all started. it started 3 days after finishing the meds. it hasn't improved at all. I can't go more than 8 hours or half a day without eating or else I'm running to the bathroom every 10 minutes. I have been force feeding myself a lot lately to prevent episodes.

at first I thought I was replasing but i've tested negative many times since then. Doctor gave me Questran to try which I am starting in a couple days.

wondering if anyone has had similar?

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u/Existing_Collar852 — 1 day ago
â–˛ 3 r/cdifficile

Doctor refusing GI doctor referral?

Hi, I'm back again, days later after that hospital visit and still doing poorly. I ate literally one pretzel yesterday and struggled to keep it down if that's any reference for how bad it's gotten.

my most recent blood tests and scan suggest a potential infection (abnormal levels of white blood cells, clear inflammation of the colon), swollen lymph nodes, and diverticulosis. so I asked my PCP (I'm with kaiser, for context, and he's unfortunately the only doctor available near me) for a GI referral, and he's outright refused twice. He states that the GI doctor won't help me in my case.

I'm only getting worse, I've been nagging and nagging, and going to urgent care for IV fluids when the nausea gets so bad I can't even hold down water. every medical professional I've seen, including my doctor, just tells me to drink Gatorade and eat bananas. I can hardly eat, and I'm in so much pain, constant pain in my lower abdomen and back.

What do I do?

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u/momimatrix — 2 days ago
â–˛ 1 r/cdifficile

Missed Period?

Got diagnosed with c diff about 1.5 weeks ago. been on vancomycin for 5 days. Have any women noticed late or missed periods with this infection?

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u/Maximum-Shirt8173 — 1 day ago
â–˛ 1 r/cdifficile

A year and half later

Hey guys I'm a year and half in. I have a question about poop smell? Some days my poop smell so bad I'm not sure what it is. How is your guys tummy after a year and half. Mine is still not the same

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u/Maximum-Revenue-8156 — 2 days ago
â–˛ 3 r/cdifficile

Ibuprofen After Vowst and C Diff?

I’m having horrible dental pain. The dentist wants me to take an NSAID like Ibuprofen or Celebrex, but after 2 bouts of CDiff and taking Vowst, I’m worried this will kill my gut. My last infection was in May and I took Vowst about 4 weeks ago.

Anyone have any problems or success taking these types of meds?

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u/Due_Bee282 — 3 days ago
â–˛ 5 r/cdifficile

Just started Macrobid

I had my one and only c diff infection about 1 1/2 years ago. I just got a confirmed UTI and burst into tears. I started Macrobid today. I know it’s lower risk for c diff and was scrolling through the posts by people who did not relapse after taking it. And yet…here I am unable to sleep because I’m really scared of a relapse. I started taking Florastor with the Macrobid. Is there anything else I can do to help prevent a relapse? I hate that I have to live in fear of relapses. I hate the dr that missed diagnosed me and prescribed the unnecessary antibiotics that cause my c diff. I hate that I now have PI-IBS.

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u/Kooky_Description770 — 3 days ago
â–˛ 2 r/cdifficile

What to eat

Sorry if this has been discussed, but I need help. Been symptomatic for 2 weeks, diagnosed on Friday, meds haven’t come in yet (all my pharmacies were out of it). I was feeling really tired last week but I was eating a “normal” diet and diarrhea had been replaced by soft stools. Once diagnosed, I switched to a bland diet, and now everything is WORSE, sleeping a lot and back to watery diarrhea. Is it just a natural fluctuation or should I not eat this way?

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u/BenevolentHoax — 3 days ago
â–˛ 2 r/cdifficile

Frustrating

I was given 10 days Dificid because I relapsed roughly a month after taking vancomycin and it seems that the infection didn’t go away. I’m in pain again, my stools are yellow and soft too, and this just DAYS after taking the last dose. I would go to the hospital but because I’m not feverish they sent me away before and told me to go to my GP (who is closed until september)

I don’t know what to do. I did everything I could, always washed my hands, bleached everything, took s boulardii and It still came back. I also cannot get tested until August 24, the GI won’t see me until October and this is the earliest appointment I could get at a different doctor

the pain is so bad though, at first I thought it was pi-ibs because I was still feeling hungry 1 ½ days after the last dose, but today I woke up in pain

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u/SunnyPomegranates — 4 days ago
â–˛ 4 r/cdifficile+1 crossposts

C.diff

Please help me. It has been more than six months since the infection cleared and I took vancomycin and metronidazole, but I still have a lot of gas, and there is still mucus left on the toilet paper when I wipe. I don’t know what else to take anymore.

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u/MelodicProfession907 — 4 days ago
â–˛ 1 r/cdifficile

Anyone have a j-pouch?

How can you tell if your c diff infection is getting better when you have diarrhea all of the time? I don't have a colon. I have a j-pouch. I usually take imodium several times a day. So how can I tell if it's getting better when I can't take imodium? Any one else have any experience with this? My GI isn't any help with this.

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u/Jennysblock12 — 4 days ago
â–˛ 2 r/cdifficile

Persistent Lactose Intolerance 6+ years post c-diff

Hi all,

I had c-diff in 2019 I believe following repeated hospitalizations for a lung infection. Unfortunately I did not know about c-diff and because I had stomach issues before, it took me a long time to be diagnosed.

However, I was treated and thankfully responded well and cleared the c-diff.

However, I have had ongoing GI problems ever since. Had a colonoscopy and endoscopy done with no real issues found. Been told I have IBS. I have learned to manage through diet and lifestyle, but am limited on what I can eat.

My greatest problem is lactose intolerance. It is bad and seems to be getting worse. I love dairy, so I try to choose lactose free where I can, and otherwise take lactaid pills. But now it seems even lactaid pills aren't helping.

I know c-diff is supposed to make you lactose intolerant, but I thought it was supposed to go away when you recover. I had a scoop of ice cream with a lactaid pill on Thursday and have had diarrhea and stomach pain ever since.

I have been tested four times for c-diff in the years since and have always tested negative.

Anyone else have persistent lactose intolerance years after successfully clearing c-diff? Is the only solution to avoid lactose dairy entirely?

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u/87_lemons — 4 days ago
â–˛ 1 r/cdifficile

Very anxious if I have c.diff

I f(20) am a very anxious and ocd-ridden person so i may seem very dramatic to the normal person and i apologize if this is what that ends up being.

I was prescribed doxycycline on july 21st after stepping on a rusty nail and took that for about a week then august 6th i got my wisdom teeth out and got prescribed amoxicillin 500mg every 8 hours i want say it was about 4-5 days of that based on the amount of pills. i’ve been off the antibiotics for a few days and just had a case of diarrhea (completely liquid, yellow tinged).

ive been a bit nauseous the past few days and hadn’t pooped for a week after the wisdom teeth and when i did it was normal and now i just had diarrhea. i took a probiotic and plan to take those for about a week or two. i am just TERRIFIED and miserably anxious about ever having cdiff.

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u/Icy_Midnight_5117 — 5 days ago
â–˛ 2 r/cdifficile

Not sure if just paranoid?

I’ve been on Clindamycin 450 3x a day for going on the third day. I have an infection in my jawbone from my teeth. I’m so nauseous and have diarrhea that is very sulfuric smelling. And my stomach is cramping.

I also have health anxiety and a phobia of vomiting so I’m extra anxious. I called my prescribing dr and am waiting to hear back. I’m just really anxious.

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u/Accomplished_Rub7034 — 5 days ago
â–˛ 4 r/cdifficile

Ugh - I'm Sure It's Back

I had a previous ordeal with c. diff that lasted about 3 years. A long routine of Vancomycin, Dificid, Zinplava infusions, and eventually Vowst. The Vowst seemed to get rid of it, and all was well for almost 3 years.

Then, I got a UTI, and the doctor treating me for it said that Cipro was the only antibiotic that this strain of bacteria would respond to. Only 6 Cipro pills, with Vancomycin to try and prevent c.diff recurrence, and it's a disaster. I've had diarrhea for days, 10 times today, and I will be getting started with testing in a couple of days.

I'm demoralized. It will undoubtedly mean at least one round of Vancomycin, possibly Dificid, and prior approval for Vowst again.

I'm upset with the doctor treating the UTI. When I asked them to, they should have prescribed an alternative medication like fosfomycin.

I find myself questioning whether I can survive this again.

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u/Warwick1991 — 5 days ago
â–˛ 3 r/cdifficile

My test was negative but symptoms persists.

I went to the ER for severe stomach burning pain, diarrhea and nausea. I was almost convinced it was c diff as it came immediately after multiple rounds of antibiotics. But apparently my test was negative. It wasn’t a stool sample but they used a rectal swab at the hospital. Is this as reliable?

I was relieved at first when they said my tests were negative, but the stomach burning pain and diarrhea persists two week after I was at the hospital. From reading my symptoms, it mimics colitis. The doctor even mentioned I could have colitis for “unknown reason”. It just seems strange I have colitis without an ongoing bacterial infection? Especially since it came right after an antibiotic course.

My symptoms were a bit better two days ago, and then I ate (I know I’m fucking stupid) a big bowl of candy sweets. Because the test was negative, I started getting careless with food/sweets. Now pain is 10x worse, diarrhea worse, smell worse.

I’m starting to think they didn’t test me properly or the test was falsely negative. They never specified “toxin A+B test”. I don’t have the test in my doctor app for some reason, only my blood work. It just says in my journal “we tested for virus, bacteria and c. Diff.

I have CONSTANT and I mean constant stomach burning in my lower stomach. It sounds and feels like colitis. But having colitis without an infection just seems strange. Even after this test they did at the hospital, I still suspect I have c. Diff. I just don’t understand what can cause these symptoms if not for c diff?

I’m not sure what to do now. I don’t understand how my test could be negative when my symptoms are: diarrhea, bad smell, horrible burning stomach pain, nausea, severe brain fog. I was on 3 different antibiotics in a span of 3 weeks. I truly suspect they didn’t test properly for it but I can’t go back to the hospital now.

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u/Lucid-Emphasis825 — 7 days ago