u/FunNothing4556

▲ 8 r/CRPS

Neurologist is sending a referral to Vanderbilt University hospital...

My crps has gotten so out of wack that my team of doctors don't know what to do anymore. I stay in a constant flare with dystonia, severe swelling where I can't even put any shoe on.

It all started as a work injury and 3 yrs later now my doctor wants to send me to Vanderbilt University for a full autonomic work up. It's gotten so bad it's starting to affect my voice. My voice is now very scratchy very low toned. Half the time when I talk no words come out....that's how bad this bullshit is.

Has anyone on the subreddit ever been sent to a major medical university for automatic issues? Id love to hear your experience. I've tried the scs and pain meds but nothing helps....I'm just in dyer need of some help

reddit.com
u/FunNothing4556 — 1 day ago

29% mmi...

I reviewed a 29% wpi due to a work injury that resulted in me getting CRPS in my entire right leg and lower back. I can barely walk now, even when I do walk I have to use a rollator to get around. Ive tried 2 different spinal stimulaters without any relief. Now I refuse to have anymore surgery bc that's how I got this rare ass disease anyways.

Now comes the waiting game to see what the defense says. I've given up on life and myself. My lawyers dr and my Dr said 29% wpi is low considering all the factors. Both doctors also put on their notes that I'll probably never return to the workforce again.

I'm so over everything. I can't walk, can't sit upright bcit causes too much pain and sensitivity. My foot/leg has been swollen for almost a year straight. After the scs trials my crps spread upward. I went undiagnosed for 1 year prior to being diagnosed so my nervous system is out of wack badly!

Now I wait to see what comes next....fuck workers comp! #fuckcrps

reddit.com
u/FunNothing4556 — 20 days ago