u/Gabba-barbar

▲ 1 r/POTS

Anyone better when blood pressure is high? Midodrine and fludro push me up to 135/80=less cognitive issue

I’m taking fludrocortisone and low Midodrine all and with several grams of salt and 2-3 litres of water.

When I do this, I push my BP up to about 135/80.

I’m mostly bed bound with CFS and POTS.
I have less cognitive issues and less problems getting up and doing things.

HR is less erratic.
Even if my HR spikes , I feel less symptomatic.

I feel a big drop when the Mido wears off and my BP drops back to 118/68 ish.

If I go too far with more mido I don’t feel great when BP is over 140/80

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u/Gabba-barbar — 6 days ago
▲ 28 r/cfs

Shelf stable meals stored in your room. Baby food is awesome

Not sure if it was posted on here before. I think I saw it on the nutrition community.

I ordered pouches of beef, vegetable and rice and well as lamb vegetables risotto.

Just something nutritious to add to my food and drink cart, and thats something different to tuna, nuts or protein bars
No added crap and in squeeze pouches.
They also have custards and porridge, I’ll try them next time.

Serving size is small, but for me it’s more if I’m home alone or in between meals.

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u/Gabba-barbar — 8 days ago
▲ 6 r/cfs

Need something for nervous system. Meds not supps etc what worked for you? Mirtazapine, amitriptoline

I have CFS and POTS and my nervous system was already jacked up, but recently there have been some stressful situations in my family.

I’m super anxious and need to start something.

Also have trouble sleeping.

I have some benzos, but need something more consistent.

Doctor prescribed mirtazapine.

Not sure it’s a good fit.

Any suggestions on what I can suggest to my doctor.

What works for you?

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u/Gabba-barbar — 25 days ago