u/GardenWalker

I joined this sub specifically to ask about a situation with a coworker. I’m hoping relatives and caregivers might be able to give me advice. How best to say goodbye, celebrate and support a retiring coworker who has recently diagnosed early onset dementia?

Would a digital picture frame filled with coworkers pictures be appropriate? Is there something that we could do that would help his wife or adult children? (We will do a monetary gift) Thank you for any advice.

Hello. I 66F w/SLE and discoid, Sjogrens and pemphigoid. Symptoms started at 16, but formal diagnosis was not until 36. No treatment until 41 when things got serious.

Two months ago, my doctor said the rheumatology college revised guidelines to advise that patients should not be prescribed prednisone for more than six months.

I am having a really difficult time getting below 3.5 mg. My body literally won’t or can’t move at times. Like I cannot move properly or fast enough. It feels like a flare. I wake up every morning with a racing heartbeat. Everything hurts. My Sjogrens and pemphigoid symptoms have flared over the last two weeks.

I’m in touch with my doctor, but I’m wondering if I can do this. Questioning if my adrenal gland is functioning at all.

Has anyone else been in this situation?