Had a crash out this morning about struggling to conceive with PCOS… am I crazy or am I seeing a VVFL? Really don’t want to get my hopes up for another failed cycle after a year of trying… impulsively taken this afternoon after an even fainter line with SMU (not pictured)
Hi everyone - I hope you’re all having a nice day. Long story short, I’ve been TTC with my husband about a year, diagnosed with anovulatory PCOS back in Feb after 10 years of suspecting and no period after getting off the pill. I’m getting treatment with a RE with medicated cycles, but that’s a whole other issue. (See my post in the TTC_PCOS subreddit if curious)
My current stress is that my husband’s grandmother has been placed on hospice (this is the first time he’ll be experiencing the death of a loved one he has a relationship with). I know she wants a great grandchild, and I know my husband wants to provide that for her. I’ve been having a difficult time with the infertility aspect of our TTC journey, and I’m just feeling like a wreck about it. I want to have a baby so badly, and I really want grandma to be able to meet her great grandchild if we are so blessed, but I just feel so guilty for being unable to provide. It is weighing so heavily on my heart and I just feel like a failure. If she passes before a baby ever comes into the world, I would be heartbroken and I just know my husband would be too (he would never share that with me, he’s so supportive and has been great through this journey).
I’m just looking for a little support with this. Has anyone else ever experienced anything similar? Thanks in advance, much love to all.
Hey everyone - I hope you’re all having a nice day. I need to know if I’m over reacting to my RE and if it’s time for a second opinion or to leave the practice as a whole. Sorry for the long post, I’m at my wits end.
I haven’t been entirely happy with my RE, she kept pushing out our appointments until more tests were done (rescheduled 3 times after ordering additional SA from hubby, more titers testing, revaccinating me after having proof of vaccinations, additional genetic testing, etc) and all communication is through her nurses that make it clear I’m an inconvenient number to them.
After HSG and a provera induced bleed, she started me on 5 mg of Letrozole right off the bat (unmonitored, just replying on OPKs and progesterone bloodwork) and I experienced weight gain of about 10 lbs in 4 weeks, severe bloating, bilateral ovulation, and persistent shortness of breath. First cycle failed, I’m on my second cycle now. On Monday I called them to ask if the symptoms were normal, the receptionist laughed and was like “gotta love the side effects!” One of the nurses messaged me in the patient portal basically telling me if it doesn’t happen this cycle they won’t have me on it again, and I wasn’t able to reply to the message.
They called me yesterday asking to schedule a consult with my dr in 3 weeks and that I shouldn’t refill my Letrozole prescription until my consult. Period is due and blood HCG test is next week. Today I called them asking for clarification and if this cycle fails if we could just reduce the dose to 2.5, as I really don’t want to lose another cycle… The nurse called me back and made me feel awful for calling them in the first place. “I’m just a nurse, we can’t answer your questions, wait for your consult to ask these questions” and “you could already be pregnant and not need the medication, no need to get worked up.” They have said similar things before.
I guess my question is, are these all normal behaviors for a RE? I feel so hopeless and am so close to figuring out the next steps to adopt a baby at this point because I really can’t take this anymore. It’s been a year TTC and being dismissed for a PCOS diagnosis with this office, they only just officially diagnosed me in February. Wait times for REs in my area are through the roof, I know finding a new one is going to be rough… I’m one mental breakdown away from giving up on my doctors all together, I can’t keep crying about this every day.
Good morning! Not sure if anyone has heard yet of the recent name change from polycystic ovary syndrome to polyendocrine metabolic ovarian syndrome, but it sounds like it will be making waves in the medical field. It sounds like it is getting approached more as an endocrine function issue than a gynecological one. Do you think that “unexplained infertility” diagnoses will shift towards PMOS? Do you think treatment/medication approaches will change?
Just looking to see where everyone’s heads are at with this. Thanks!
Source is here: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(26)00717-8/fulltext
Hi there! I hope everyone is having a nice day. Looking for some feedback. I’m currently on my second medicated cycle (Letrozole 5 mg), as I have anovulatory PCOS. My first medicated cycle I had 2 false starts, but was able to catch my real peak and the LH fall on the 3rd LH rise, ovulation confirmed with robust progesterone reading in bloodwork, but ultimately AF came. This cycle I haven’t seen any false starts, but I have plateaued in consistently positive OPKs since evening of CD 15. I’m getting a blood test for progesterone reading on CD 22, but in the meantime, has anyone else experienced a plateau of positive OPKs after a peak of confirmed ovulation? Success stories after something like this? Any other feedback or similar experiences?
Thanks a bunch, appreciate any and all responses.