Mine is that my muthafuckin last drain is finally starting to lighten in color. Three and a half weeks out from DMX and I’m ready to name it and call it my pet.
Still in so much pain and can’t do shit around the garden but I’m crossing my fingers for my next appointment on Wednesday!
Anybody else celebrating small (or big!) wins today?
I am having a sad day. I’m three weeks out from DMX and this is my second diagnosis after a lumpectomy and radiation in 2021. Overall, I’m really optimistic and feel like I’m in good hands.
I am just so sad and feeling sorry for myself today. Spring is my absolute favorite time of the year because I throw myself into gardening. My husband took me to a garden center and I walked around slowly, didn’t really carry much, and then just sat so hard when we got to the car.
And all I could think about was how I used to run around these places and throw my plants in, haul big bags or soil, and just get absolutely filthy. The best I can manage is a walk around my yard to see my perennials progress each morning.
And I guess I’m lucky in a lot of ways but in some ways I’m not and today it’s just an unlucky feeling kind of a day.
Thanks for listening.
Ugh, I’m so irritated. I’m just hanging out waiting on my oncotype after a DMX three weeks ago.
I just called exact sciences and they didn’t receive my specimen until 5/14. The order date was 5/6 so there was a serious delay getting the specimen from the pathology place to exact sciences. It takes 10-14 days for testing to be completed.
So, I’ve already pushed back my treatment plan appointment with my onco once and will most likely have to push it back AGAIN.
We got a recliner for my recovery (husband works at a furniture store) and honestly-I’m not sure I could have gotten through it without the chair.
I’m almost two and a half weeks out and still sleeping on it. I tried my bed last night after three/four drain removal but fill in side sleeping is painful.
I moved back to my chair halfway through the night and curled up with a big pillow sort of on my side.
My pathology came back from my DMX and it doesn’t say anything about the lymph node. The PA from my surgeon office called to tell me my margins were clear (I feel like that is great news but also expected with a DMX?) had she had no idea why there was no info in the lymph node. So I went and did the research into my surgery report and they couldn’t take one! This is what the report says “No appreciable technetium signal or visible blue lymphatics entering or found in the right axilla. No lymph nodes were taken”.
I’m so upset about this. Just for some context this is a second diagnosis-my original was in 2020 and I got a lumpectomy with radiation and a DMX this time. And for the most part I feel like I’ve been pretty effing positive about all this but this is completely throwing me for a loop.
Does anyone have anything they can say-anybody else experience this?
I’m on day four of DMX recovery and this is the hardest night for sure. Pain wise I’m doing fine but my fucking bandages itch so bad. And just generally I’m really tired and just don’t want to do this.
I’m stage 1 but this is a reoccurrence from 2021 where I had a lumpectomy. I’m just so feeling sorry for myself right now.
Any advice at all on the itching?
Tomorrow is finally the day for my DMX. I have an overnight “booked” but may be able to go home. I live like 15 minutes from the medical center so I’m packing an overnight my husband will bring me if I end up staying.
Phone charger, chapstick, extra pair of undies. Anything else?