u/GlitteryGarden55

Hi everyone, I suffer from ME/CFS and POTS, recently I've been having reactions to medications I didn't have problems with before.

I was advised to look into MCAS as it is common in people with these conditions.

Has anyone ever head of something like this? Should I speak to an allergist?

In short i wanted to know if this could be MCAS.

For now I don't have any other specific allergic symptoms... But when I have these reactions my brain feels "weird" I don't know how to describe it.

Hi, Just wondering if anyone also has Crohns or Ulcerative Colitis as comorbidities.

I developed Crohns before ME... I was also curious to know if any of the immunosuppressants for IBD helped you with ME symptoms.

Hi everyone,

I recently started having flu like reaction to medication I take, in particular this started happening after i took one pill of the antibiotic Cirpo which i had a horrible reaction to. The effects of this reaction lasted about 1 month, but I didn't experince flu like symptoms on this medication.

After this i had a flu like reaction to Amoxicillin which i always took without any problem before.

I also had a flu like reaction to the immunosuppressant i was taking after 4 days, I had to stop it, now my baseline has gotten worse.

Could this be related to MCAS? Or is it just having ME?

I don't know what to do beacuse i need to be on these medications, so i can't just keep stopping them.

I will take any advice! Thank you.