u/Glum-Protection-5044

So I was all prepped and in the pre surgery room gown and everything when the anaesthetist suddenly read about the iih and cavernoma (this information was in my notes from the moment I went to my surgeon). They called my neurologist and neuro surgeon and came to the conclusion that a laparoscopic hysterectomy would put too much pressure on my brain. I’m so frustrated that they didn’t bother to follow this up earlier lucky the anaesthetist was on the ball otherwise who knows what would have happened in surgery🤦🏻‍♀️.

I’m also annoyed that my neurologist has not tested my pressure since I started treatment nearly a year ago. It’s like they just assume that what they’re doing is working. Is this normal for iih or am I expecting too much?