Diagnosis and Surgery
Looking for some insight from those who have been through this.
I’ve had kidney stones on and off since 1999, with several smaller stones over the years and three significant attacks recently, including two that required medical care this year.
My labs have been a bit confusing:
• PTH was 121 in April and most recently 60.
• Serum calcium has been high-normal, most recently 10.1.
• Ionized calcium was elevated at 1.33 and most recently 1.29 (high-normal).
• Vitamin D was low at first (24) but is now up to 35 after supplementation.
• FHH genetic testing came back negative.
• My endocrinologist isn’t convinced I have primary hyperparathyroidism, but because of my history of kidney stones, I sent my records to the Norman Parathyroid Center for a second opinion.
After reviewing my latest lab results, Norman scheduled me for a surgical consultation next week.
For those who have been patients there or have had similar labs, does Norman typically schedule a surgical consult only when they think surgery is likely? Or do they meet with many people who ultimately are told to continue monitoring?
I’d love to hear about your experiences, especially if you had normal-high calcium, elevated PTH, and recurrent kidney stones. Thank you!