r/Parathyroid_Awareness

Hey y'all, been dealing with these symptoms for almost three years now, and every sleep medication marginally improves my sleep and I have to rotate them frequently. I've ruled out every cause of my insomnia (many awakenings at night) It's been extremely debilitating to say the least. I FINALLY have some lab work that seems to somewhat point to hyperparathyroidism, but it's not a shoe in. I would love some feedback from you all.

When I take a Vitamin D or Calcium supplement, my sleep gets significantly worse for a night.

26 Year old Male

CONTEXT: Calcium has been about 10.3 all the way back to when symptoms began, and has been 10.4 on the last three blood tests, spaced 3-4 months apart.

Vitamin D was measured at 30 a year ago and now is 21.

There are some ranges online (including UCLA) that mark 5.2 as the upper limit for ionized calcium.

Recent results:

Everything besides June 27th was @ the ER. 6/27 was routine ordered bloodwork by my NP. No one has ever brought it up. Either when it was a little low (7.8) or the jump to 12.3. Anyway, I have not gotten my PTH level checked yet. But w/out it, with a jump to this high, do you think I’ll end up having surgery?

Along w/ the vomiting (they attributed to my not yet officially dx’d gastroparesis), I also have a 1.2 cm kidney stone, & some others that are a lot smaller.

(Just had new bloodwork done yesterday, & completely forgot to ask for PTH, but will get a new calcium). So if it’s also around 12, & the 12.3 wasn’t a lab error, I’m definitely going to ask to have my PTH tested