u/WikkedArtist

I know a few of you have read bits and pieces about me and my journey, or rather hell, that's become my life. This is more of a rant out of pure frustration.

I am 60, I was born without a hip socket that did not get diagnosed until I started school. While the earliest I remember chronic pain was when I started school, my mom however, says that since I was born I cried more than any child she recalled, especially if I was sitting upright. I was also blessed with Ehlers Danlos Syndrome that went diagnosed for nearly 3 decades. Because of the hip issues I also developed scoliosis in my thoracic spine and tailbone, it is mild though. I also have Anklyosing Spondylitis, RA, OA, MFPS and many co-morbid health issues.

The amount of current damage in my neck, shoulders, wrists, hands, entire spine, not just a spot, nope it's the whole thing, is beyond belief. The good hip starting to head south, a knee without any cartilage for decades and issues with my feet also top the list.

I've had numerous surgeries on my hip since a child from completely rebuilding the hip to full replacements and revisions. In fact I need yet my 6th revision and a knee replacement. I've also been through numerous joint surgeries from growth cartilage removal, ACL, PCL, multiple Cervical fusions, shoulder surgeries and more. My cervical fusions, 3 of them, failed, and need re-fused but I refuse!

My chronic pain started in school as mentioned and escalated to a daily thing by the time I was 10. By the time I was 14 I began to have issues with Anklyosing along with hip and knee pain. I was on numerous meds that ultimately damaged my stomach. At that point I was put on pain medication. It was not daily but was there should I need it. By the time I was in my 20's I was on medication 24/7.

I have always been a great patient, never once in 40ish years did I ever run out, never took more than prescribed, never begged for increases, always went to my appointments, even subjected myself to steroid injections that did more damage than good. I had an incredible PM who never questioned me because he didn't need to. He retired 2 years ago due to DEA habitual harassment because CVS got a bug up their ass and kept reporting him. Never once did that have a case against him.

I was given a list of doctors who all told my doctor at the time that these they would in fact take over my medication management. I wasn't even on a high dose! Well guess what, not one single doctor would help me. Not only would they not help me, no doctor in my area remotely cares to. Oh they love me because I am a unique case to study. Sure call me up because you need or want to present the oddity, but help me? Absolutely not!

Pain for 60 YEARS, dozens of operations, numerous painful diseases, the inability to function increasing every day, and no help. It's not like I fell or had an accident, it's not like it's something new that happened to me, this has been my entire life!

Seriously, I ask, what more needs to be wrong with me before someone literally helps? It's not about comparing my issues to someone else's, it's about where the hell is compassion? I didn't freaking stub my toe people!

It's Sunday so you know what that means, Free Awards! Reply for a free award and have an awesome day!