r/DiagnoseMe

I’m a 30 y/o female. So at the end of March I had an episode where I felt faint and went to the hospital. They took my blood, and my white blood cell count was mildly high (15). From there, I followed up with my primary care who said eh prob a virus and reran my blood. Still high. CRP is also mildly elevated in case anyone knows what that is. They both go up and down but never normal. He then sent me off on my way to specialists. I’ve seen gastro, cardiology, hematology (3x), neurology, rheumatology and probably some other ology I can’t think of right now. I don’t feel good ever. Like not even an hour in the day. If I had a moment of feeling ok this would all be so much easier to handle. I have extreme fatigue, headaches, leg pain and sometimes low grade fevers upon waking. I also lost weight during this period, like a good amount - to which my primary care dr said “eat a burger”. He thought it was anxiety for the first 3 months. It wasn’t til recently that he changed his tune.

Ive had scans , bloodwork and anything you can name done by all these specialists. I have been through so much and it has been so stressful. My bf and I were SO close to getting engaged before this it hurts so bad. We also bought a new house during the time I was sick (i wanted to wait til I had my health figured out, but he convinced me it would be a good decision). So now I have a beautiful house that I still have boxes everywhere and cannot enjoy because I always am worrying and always feel like shit. I used to be a fun and energetic person and now I can’t do like anything. I can’t play pickleball or go to the gym like I used to.

On my bf, I also feel like my illness is ruining our relationship. We used to do sooo much fun stuff. Like weekend trips to wherever the hell we want. Travel, being active. We did sooo much. And now I’m too sick to do anything. I can go out to dinner or something like that but I’m not even having fun bc I feel awful. He is under so much stress with work and now he has a sick gf. Not even just a sick gf, one that has not been diagnosed and is going from specialist to specialist. It would probably be easier to support me if I had a diagnosis. There’s a special sense of hell of knowing something is wrong but not knowing what. Every specialist just says “not my area”. Someone is fucking wrong.

I worry about having cancer every day. I was tested for blood cancers but only the common ones I believe. I’ve had scans and no masses but what if they’re missing it. I worry about death. I worry that I’ll never feel good again. I do not want to die, in fact I want to live more than anything. I want my life back. I was so happy. But sometimes I think it would be easier to die instead of going through being a medical mystery. I miss myself so much. It’s been a bit over 6 months since I have felt normal. So long that I am grieving my life before this hell.

Another stressor is work. I really didn’t want to tell my boss, but I had to. I cried. I’m on intermittent fmla that only covers 1 day per week, and I only have 18 paid sick days left. My mom was hit by a car in April and I went on fmla for 2 weeks for her. That was at the beginning of this illness, and I didn’t feel good the whole time I was taking care of her. Thank God she is better now. But I am not. And now I have barely any fmla time. I am at work right now and I feel awful. I work in education and I was praying I would figure this out and feel better by fall because it is so busy and demanding. I do work a desk job bc though. If I had a physical job there’s no way I could show up. But every day is so fucking hard. I gag in the morning from anxiety. I wake up hot and feel sick but have to fucking go to work. I need the insurance. I have a mortgage now.

Anyway, this fucking sucks. If I make it out of this I will never take anything for granted again. When you are healthy you don’t realize the small things you take for granted. I really want to be healthy again. I want to be me again. I want to cook, clean, do activities.

Meal is depressing lean cuisine that I’m eating at work while feeling like shit. Thank you for reading. If you pray, any prayers would be appreciated. If you don’t, just good positive vibes would be appreciated.

Edit: I did not expect this to reach so many people. For those asking my wbc has been from 11-17 bouncing up and down. My crp the lowest was 5 highest 13.9 most recent 8. My platelets also are on the higher end going up and down from 300s-485.

I have had my vitamins checked. Ferretin was 14 but I brought it up to 70 with supplements. The hematoligst still prescribed iron infusions so I will get them done. She doesn’t think my symptoms match just low iron tho. And I don’t know why I’m iron deficient I have light periods and had a colonoscopy upper endoscopy so it’s not a stomach thing. Vitamin d was low but not too low 25 and I started to take supplements it went up to 47.

I’ve had an mri of abdomen and pelvis a brain mri and an mra of abdomen and all were ok the only findings were nonspecific.

I was tested for all tickborne diseases and had an extensive infectious workup.

I have no idea what is going to happen to me and I feel so hopeless and like giving up. but I just want to thank every single one of you that offered any type of suggestion or any reply at all. You have all made me feel less alone.!

I have swelling in my lacrimal gland, lymph nodes, temples, the base of my skull, neck, and collarbone, as well as lumps around my shoulder blade. My hard palate is shifting into a high arch, my soft palate feels stretched, and there is red pigmentation across my chest and neck. I’m experiencing neurological issues and pain, and holes in my bones and my nose bending to the left and nearly collapsing. Ears feel like there sinking into sku. Jaw feels lower and pulling away from tmj. These symptoms are worsening daily. Scans show left-right asymmetry. It feels as though my neck is twisting and affecting my hard palate; my teeth are moving, my gums are bleeding, and their shape is changing.

I’ve documented around 50 complaints and every symptom. Whenever things worsen, I contact my GP or go to A&E. I wait for hours while feeling unwell, only to be told, “What do you want us to do? Your scans are fine; there’s nothing wrong.” In my view, inaccurate statements are being recorded in my notes. Which doctor claimed I said I had maggots and an infection in my skull? I know what my scans show because I can read them. WTF!!!

I’m being told that I have mental health issues and health anxiety. My experiences with the NHS have left me terrified to ask for help because I feel dismissed and portrayed as a “nut job.” I’m exhausted from pursuing second opinions and pleading to be seen and heard. My scans clearly show something; I just don’t know what it is.

hey guys! any help would be really appreciated

I (26M) have a really high pain tolerance, so I can't tell if my knee is infected or if I'm just freaking out.
For context, I'm 2 weeks out of getting 22 stitches removed from a left knee cap after a work accident. I took the anti biotics, but the top of the knee stitches didn't take due to placement ...

Now, everything else is healed and sealed except for the part that opened up. It's definitely gotten better, but the thing that scared me was earlier today, it was sitting with me knee bent and all of a sudden, a clearish white discharge just SHOT out of my knee like a water gun. I've never seen anything like it

I've been covering it with soft gauze and putting neosporin in the gap .. but I can't tell if it's helping or hurting, I just don't even know what to do at this point

Thanks guys!

I went to doctor thinking this might be herpes or HIV, and tested got negative results, they gave me Immuactive medicine and some ointments after using and taking medicines it slowed down, and now it's coming back, when I cut it from the surface it bleeds a lot new set of clusters grows back. Doctors give me your thoughts please.

I felt low blood sugar coming on and my husband suggested I check it. He left me use his meter- with the needle in a common spring-loaded trigger. I rubbed my arm, pressed the trigger and a small bead of blood came up as expected. Number was 112. The spot immediately began to bruise- just the size of the trigger thing which was 1/4" wide. Three days later and it has grown to an inch wide and swelling a bit. I know this isn't normal. I can't imagine having to check my numbers three or four times a day and getting bruised like this. What gives?

female, 20, live in england

today is sunday. on friday morning, i woke up with a superrrrr sore throat, and i noticed a red spot on my leg (the one nearest my ankle). i didn’t think much of it, assuming maybe it was a bug bite or something, and was more focused on my sore throat.

i went to work, and omg was i freezingggg but my body was hot, at some points sweating (i live in england, and the weather was averaging 16-22°C i’m pretty sure). again, didn’t think much of it. throughout the day, i started feeling pretty nauseous and lightheaded with headaches. when i got home, i noticed 2 more of the spots on my legs. i took my temp and it was 38.3°C. i ended up taking a nap at around 7/8pm, which is super unlike me, i don’t usually nap. when i actually went to bed, i was sweating so bad.

saturday i woke up and felt fine. the spots were still there, i felt a bit nauseous and lightheaded, but i felt pretty ok. i had no temperature, but still kept feeling a bit colder than i probably should. by the evening i felt a little worse, but again no temperature. but for about an hour and a bit before i slept i felt so nauseous, almost as though i was going to be sick.

sunday, again i felt fine, still a bit cold and nauseous, spots still there, but mostly fine. my mum started to get a bit concerned about the spots, so we were looking them up and tried the glass test on them, and they didn’t seem to fade. we called 111, and they told us someone would call us back within 2 hrs. almost 8 hrs later and we haven’t had a callback. we got a message saying there was a delay due to a high number of calls.

while i’m waiting for them to get back to me (if they do), i just want some idea of what could be causing this, as google is giving me all the extremes and stressing me out 😭😭 tyyy

i've had these two small bumps on my boob (specifically the right one) for almost a year now. they don't itch, they don't do anything actually but when they formed they were more like pimples, then they healed into this. i only am stressed on if they will keep multiplying or if it's cancer, either one freaks me out 😭

i'm gonna go to the doctor when i can but they just annoy me sm and taking photos of myself has been eh bc i find them not flattering lol. any help would be great

I noticed the little hairs under my eyes years ago before starting birth control and I’ve been on it for four years and off it for a year and a half now. The hair grew more after I stopped birth control. The hairs are under my eyes and some on my cheeks. I also recently noticed one on my jaw. And I’ve also noticed that I’ve started growing hair in between my breasts however those aren’t really noticeable and I’m wondering if those might be normal. I highly doubt my hair under my eyes and cheeks is genetic, because nobody in my family has it. Even with searching up PCOS I’ve never seen anyone with hair under their eye. It’s not peach fuzz because it’s brown and can grow longer than my actual peach fuzz on my face. I’ve gotten blood tests on my hormones already and everything came back normal.