NHS keep dismissing me. 2 years of torture and health declining. Don’t know how much more I can take!
I have swelling in my lacrimal gland, lymph nodes, temples, the base of my skull, neck, and collarbone, as well as lumps around my shoulder blade. My hard palate is shifting into a high arch, my soft palate feels stretched, and there is red pigmentation across my chest and neck. I’m experiencing neurological issues and pain, and holes in my bones and my nose bending to the left and nearly collapsing. Ears feel like there sinking into sku. Jaw feels lower and pulling away from tmj. These symptoms are worsening daily. Scans show left-right asymmetry. It feels as though my neck is twisting and affecting my hard palate; my teeth are moving, my gums are bleeding, and their shape is changing.
I’ve documented around 50 complaints and every symptom. Whenever things worsen, I contact my GP or go to A&E. I wait for hours while feeling unwell, only to be told, “What do you want us to do? Your scans are fine; there’s nothing wrong.” In my view, inaccurate statements are being recorded in my notes. Which doctor claimed I said I had maggots and an infection in my skull? I know what my scans show because I can read them. WTF!!!
I’m being told that I have mental health issues and health anxiety. My experiences with the NHS have left me terrified to ask for help because I feel dismissed and portrayed as a “nut job.” I’m exhausted from pursuing second opinions and pleading to be seen and heard. My scans clearly show something; I just don’t know what it is.