r/NeurologicalDisorders

Any recommendations appreciated. I need help. Last 16 months sleeping 0-3 broken sleep a night. No sleep drive at all. Cannot fall asleep for 1 second on own. Benzos only thing out of 30 drugs that can get me an hour but now they are useless. None of the z drugs or psych meds ever worked. Drs say I could have fatal insomnia. Petscan shows hypometabolism everywhere except the thalamus. Muscle spasms. Spinal tap showed elevated 14-3-3 protein levels. CBT-I did nothing. My heart rate is in 50-60’s its not anxiety related. The prior 12 months I had extremely high heart rate panic attacks; hospitalized many times with no answers. Been to various hospitals across country.

Any insight or suggestions on anything that could help is much appreciated.

In the last few months when my clusters get really bad I constantly catch myself in these moments where my muscles are super tense. My feet are typically stuck with my toes pointed toward my shins and my arms curl slightly inwards but not super noticeably, and my shoulders are like level with my chin. I don’t notice it until my body relaxes and then I’m like “whoa, I was super tense!”
I can’t tell if these are types of seizures or just me being super stressed or what, but I never notice when I go into them, only when I come out, and it typically happens when I’ve had a lot of other seizure activity. Does anyone else experience this??

I haven’t posted here in a while because I’ve been trying different avenues on getting better. My main symptoms was I felt off in a little bit weak in March 2025. I was diagnosed with Hashimoto’s from there. I started levothyroxine August 2025 I started noticing muscle twitches and even more weakness. I ended up getting a clean EMG in October 2025 and then in November 2025 from two separate neurologist, the first one showed fasciculations in my lower extremities. The second one was normal. Both nerve conductive studies were normal. I’ve been dealing with full body weakness since September 2025 we are now in August 2026. I’m so weak I’ve been out of work because of it my legs get super stiff. My quads are very weak. My shoulders are weak, and I experience on and off like muscle twitching, flareups flare, and I’ll notice more weakness in that area. When these twitches initially happened, they were my thighs. My legs have overall gotten a lot weaker in a year. I’ve been less mobile. I feel like my knees are always collapsing. My neurologist have been trying to treat me for a variant of unknown significance in the SC4NA Gene, which is a form of Periodic Paralysis which he thought was paramyotonia finding out from a genetics specialist that this variant is only 5% pathogenic and I’ve been treated with Diamox and doesn’t really seem to show any advantages. I went to the university of Penn med and saw a Dr Lauren Elman who is the MDA clinic chairperson and was the head of the ALS clinic for a while at the university of Pennsylvania along with a professor of neurology . We had about an 80 minute chat about everything going on. I passed a clinical. I was able to squat get back up walk on my heels and toes strengthen my hands she said my muscle bulk was normal. My reflexes were normal little brisk on my knees my walk was normal. My tongue was strong. Showed her the two previous EMGs that were done and she told me hand to God. She does not think I have ALS. That I do not have ALS after a year I would show worse symptoms or at least a clinical weakness or clinical failure. She said I had peripheral nerve hyperexcitability syndrome. With a root cause of possibly from Hashimoto’s back in March 2025, causing an idiopathic syndrome. She really only prescribed tonic water at night about 7 ounces and to try to start PT. Since then, I have felt extreme amount of weakness definitely in my legs if I start driving, and I hold my arm up too long on a steering wheel, my arm can hurt for a week the shoulder could feel weak for a week. She didn’t think it was medically necessary for another EMG. She said I show no signs of atrophy and my CK levels have always been in a low normal like 60 or 70. I’m very limited on what I can do. I’m just tired easily walking and I feel internal vibrations. I get tremors sometimes, but the biggest thing is the weakness mainly in like the biceps and in the thighs I’ve had work ups like you wouldn’t believe I’ve seen every single doctor. You can imagine besides a gynecologist and I’m a male. How do I get this fear out of my head I feel like I’m just waiting for a clinical failure. I’m completely exhausted almost all the time. Should I demand another EMG? I’ve noticed a lot of younger males especially that were physically active Seem to progress a lot slower, and don’t show clinical weakness for a while. Please if anyone has any insight, please let me know.

Hi everyone. I’m posting because I’m hoping to connect with anyone who has experienced something similar. I’m not looking for a Reddit diagnosis—I’m looking for experiences, questions I should be asking, and hopefully some reassurance from people who have gone through something medically confusing.
In February 2026, I suddenly developed a series of severe neurological symptoms. Since then, I’ve been given several different possible explanations, including bilateral Bell’s palsy, FND (functional neurological disorder), and possible myasthenia gravis (MG), which was later changed/ruled out.
The hardest part is that I still don’t have a clear explanation for what happened. My biggest fear now is that it will happen again suddenly, and I’ll be back in the ER without anyone knowing what is actually happening or what should be done.
How it started
Saturday, February 7, 2026
I suddenly developed swollen eyes and a severe headache. The headache became persistent and affected my sleep—I was sleeping only around 2–4 hours.
Sunday–Monday
The headache and eye swelling continued. I also developed heavy night sweats and a fever. I was taking Motrin and Tylenol, but neither was helping.
Tuesday
I went to urgent care because the headache had become severe and I could no longer lift my eyebrows.
Later that day, I went to the ER. While I was explaining my symptoms, my face suddenly began to droop. I also developed episodes of slurred speech and speech that did not make sense. Some of these episodes were recorded on video.
A CT scan had been performed before the facial drooping began. I was told the symptoms could be related to a concussion because I had been in an accident about two weeks earlier.
Wednesday
I returned to the ER because my symptoms were worsening. I was experiencing:
Slurred speech
Blurred vision
Difficulty spelling my own name
Saying numbers instead of letters when asked
Being unable to correctly recite the alphabet
Memory lapses and confusion
Increasing facial paralysis
I was prescribed prednisone and an antiviral for five days and was told at another ER that it was standard Bell’s palsy. Unfortunately, I misunderstood the medication instructions and missed one dose.
After that, my symptoms continued to progress.
I went to two additional ERs. At one point, I was told the symptoms were likely FND related to stress. My lip was stuck in a curled position and twitching extremely rapidly—something I physically could not control—and I was also having significant visual problems despite not normally needing glasses.
After I resumed the medication correctly, I initially experienced a significant improvement. However, approximately two hours later, the facial paralysis returned and progressed again.
What happened afterward
Over the following days, I went to another ER that specializes in eye/vision problems. They performed an MRI with contrast, which showed what I was told was significant inflammation involving my facial cranial nerves.
I was diagnosed with bilateral Bell’s palsy.
The doctor did not feel comfortable sending me home in the condition I was in and arranged for me to be transferred to another ER. However, at that hospital I was told that the symptoms should resolve after finishing my medication and that I was safe to go home.
My symptoms continued to become much more extensive. At different points I experienced:
Jaw locking
Severe facial asymmetry and facial tilting
Complete drooping of one eye and inability to open it
Extensive facial paralysis
Difficulty speaking
Difficulty seeing
Left arm pain with movement
Left hand weakness/symptoms
Difficulty walking
Severe balance problems
My left leg pulling/flexing inward
Difficulty extending my arms
For approximately four weeks, I was dealing with symptoms that affected my ability to talk, walk, see, use my arms, and control my facial muscles.
Eventually, things gradually began improving.
Then something strange happened.
For another period of about four weeks, the facial paralysis would mainly occur at night or while I was sleeping. I could wake up with the paralysis present, and as the day went on it would gradually improve. Then it would return again at night.
Eventually, this stopped completely.
Neurology evaluation
I then saw a neurologist because I was still trying to understand what had happened. She felt that some of my symptoms could point toward myasthenia gravis (MG).
I had an MRI, EEG, and blood testing, but nothing came back abnormal enough to explain what had happened. Eventually, I was essentially told that there wasn’t anything else they could do for me because they didn’t know what had caused the episode.
One thing that happened during my EEG was particularly strange.
During the test, I suddenly couldn’t move my fingers. My fingers became purple/blueish, and the staff had to physically flex my hands for me because I couldn’t do it myself. They told me they had never seen that happen during an EEG before.
The two triggers I have noticed
There are two things I have noticed that seem to be associated with my episodes:
1. Direct impact to my head
I had a direct impact to my head approximately two weeks before the February episode. I was subsequently told that some of my symptoms could be related to a concussion.
2. Fever/illness
The February episode also occurred while I was sick and had a fever. Since then, I’ve become very concerned about getting sick or developing another fever because I don’t know whether illness is somehow triggering these episodes.
I don’t know whether these are actually medically confirmed triggers or whether the timing is coincidental. I’m specifically mentioning them because these are the two patterns I’ve personally noticed and I would really like to know if anyone else has experienced something similar.
Where I am now
So I’m left with several diagnoses or possibilities that have been discussed:
Bilateral Bell’s palsy
FND
Possible MG, which was later changed/ruled out
But I still don’t have an answer that makes sense of the entire episode.
I understand that not every symptom necessarily has to come from one condition, and I’m not trying to convince anyone that I have a particular disease. I just want to understand what happened and, more importantly, what I should do if it happens again.
What scares me most is that it came on so suddenly and progressed so dramatically. I don’t want to be in the ER again, unable to speak, walk, see, or control my face, and have everyone tell me something different while I’m getting worse.
Has anyone experienced anything similar?
I’m especially interested in hearing from anyone who has experienced:
Bilateral Bell’s palsy or bilateral facial paralysis
Facial paralysis combined with neurological symptoms
Facial paralysis that fluctuates or returns at night
Speech/language problems occurring with facial paralysis
Vision problems occurring with facial paralysis
Limb weakness or abnormal limb positioning alongside facial paralysis
A diagnosis of Bell’s palsy that later became something else
Being diagnosed with FND when there were also unexplained physical/neurological findings
Being evaluated for MG and eventually having that diagnosis changed
Episodes associated with direct head impact
Episodes associated with fever or illness
If you’ve been through something similar, what ultimately helped you get answers?
Were there specific specialists, tests, or questions that made a difference?
And most importantly, did your doctors ever give you an emergency plan for what to do if the symptoms suddenly return?
I’m honestly scared that this could happen again out of nowhere and that I’ll still have no idea what to do.
I would really appreciate hearing from anyone who has gone through something remotely similar—even if your eventual diagnosis was completely different from mine.
Thank you for reading all of this. ❤️

Context: I have GAD and MDD. Anxiety had been particularly bad since April 2025 and depression since October 2025. Was improperly tapered off an SSRI I was taking (had been on it for 12 years, was told to taper off over the course of a week!) which sent me into a revolving door of psychiatric medications.

Shortly after an emotional "crash" (nonstop ugly crying and a feeling of derealization) in March, I began developing light sensitivity. At first this was triggered only by looking at screens or things that move rapidly. It was shortly after I increased the dose of the SSRI I was on at the time, Lexapro, so my psychiatrist said let's go back down and get you into see an ophthalmologist.

So I saw an ophthalmologist. Then another. Then another. Beyond checking my eyes for glaucoma and dry eye, none of them could give me an answer. I do not wear glasses and never needed them. Meanwhile, my eye strain was progressing, and it became difficult to drive without feeling some sort of pain. I invested in a heated eye mask and eye drops, but neither made much of a difference.

I switched to Trintellix. Started doing Spravato for MDD. They helped my cognitive symptoms of depression a tad but not much else. My vision really began to bother me; now my eyes are more or less hurting me all the time. My psychiatrist said serotonin can affect your vision so let's try to wean you off the Trintellix and use Rexulti as a bridge.

Results: not good. Not only are my eyes still hurting, but I occasionally have trouble seeing in the dark now. I also feel extremely sluggish, fatigued, and low; obviously could all be symptoms of depression, but I am just getting the feeling that something is "wrong." I don't know how else to describe it, but I'm suffering.

I have an awful time sleeping without trazodone and literally cannot nap. I got a sleep study done and aside from a REM latency of 11 minutes, nothing seemed out of the ordinary. I suspect this is also related to my depression.

The ONLY thing that brings any sort of relief is clonazepam, 0.5-1 mg. It temporarily takes the eye strain away. A neurologist I saw said this isn't very helpful because we don't know which aspects of the clonazepam (anti-anxiety, muscle relaxant, anti-convulsant) are working. I am acutely aware of the dangers of taking benzodiazepines for a prolonged period of time and I'm terrified that I'm going to get addicted, but my psychiatrist said if this is what's working for me then keep doing it as a bridge.

My problem is I don't know where this bridge is going. I've been in an IOP program for 5 weeks and they're all lovely people but I can't focus on the material or my peers very well because of my cognitive symptoms. I've had depression before but it did not feel like this. It just feels like something is wrong neurologically. I have a neuro-ophthalmologist appointment but that's not until October. Right now my symptoms are just feeding into my mental health in one big nasty loop.

Any suggestions, advice, or good vibes would be GREATLY appreciated...thank you.

P.S. had an MRI in June, it came back clean. I recently had a QEEG that will inform TMS treatment.

Hi I’m a 41 yo M. 5’11 225lbs.
Medication: Trazadone 150mgs at night sleep.

Symptoms that are constant:
\-Neck pain and muscle stiffness
\-Severe light sensitivity
\-My vision looks like mild TV static sort of translucent
\-Hyper sensitive nervous system (overly emotional, jump out of my skin at the smallest of sounds, panic attacks, sweaty palms and impending doom feeling.
\-Brain fog, terrible short-term memory
\-extremely sensitive to small amounts of coffee or nicotine

Symptoms that come and go:
\-Chest pain, my heart rumbles really hard sometimes, or it may just be really fast.
\-A feeling of disassociation
\-tingling in the back of the skull.
\-pressure in my skull.

Before all of this happened, I was very active. I worked out at least three times a week, lifting weights and ran on the treadmill three times a week.

About four months ago, a pain settled in the back of my neck, right below the base of my my skull. I noticed light sensitivity in the beginning and then over the course of another week. It got really bad and that’s when all of the symptoms came crashing down on me. I tried to manage at work for about six weeks and then I ended up quitting because I kept making so many mistakes and I couldn’t function. I’ve been to the ER six times I’ve been to my primary care twice. I’ve been to the urgent care twice. I have a neurology appointment the 19th. I recently saw an orthopedic they prescribed physical therapy. I’ve been doing that for about three weeks for my cervical neck area it has not helped. I’ve had CT scans of my head and neck. They were negative x-rays are negative. All bloodwork is negative. I was cleared from the ER for heart attack and stroke. EKG is normal insurance wouldn’t pay for the MRI. I had to do at least six weeks of physical therapy. Still waiting to finish.

Any help anyone can provide I would greatly greatly appreciate it. My quality of life is about zero. I have only left my house to make it to the grocery store in the past 2 1/2 months. I lay on the couch all day. I have to wear sunglasses inside of my house with the shade drawn.

I’m at my wits end.

My dad suffered a gunshot wound to the head a few years ago and somehow survived. He was left with permanent neurological issues, including hearing loss, numbness in half of his tongue, and severe shaking in his hands. His hands shake uncontrollably and it significantly affects his everyday life.
His doctors are now recommending deep brain stimulation (DBS) to try to control the tremors. From what I understand, they would implant electrodes into a specific area of his brain and connect them to a stimulator implanted under the skin.
Most of what I can find about DBS is related to Parkinson’s disease or essential tremor, so I’m having a harder time finding people who have gone through it specifically for post-traumatic tremor after a brain injury.
Has anyone here had DBS for tremors caused by a traumatic brain injury, gunshot injury, stroke, or other structural brain damage?
If so:
How severe were your tremors beforehand?
How much did DBS actually reduce them?
Did it improve your ability to use your hands normally?
Did you experience problems with speech, balance, memory, sensation, or anything else afterward?
How difficult was the surgery and recovery?
Did you have neurological deficits before surgery, and did DBS affect any of them?
How long did it take to get the programming/settings right?
Knowing what you know now, would you do it again?
I’m especially interested in hearing from people with an injury similar to his because I realize his situation is very different from someone receiving DBS for Parkinson’s or typical essential tremor.
We’re trying to understand the realistic benefits versus risks before he makes such a major decision. Any firsthand experiences would be really appreciated.

Well. Hope some peeps can help me.

Started January of 2026. Twitching in calf under skin and slight twitching in other places. and fatigue and brain fog. Went to Neuro. Did mri and eeg. All good. Twitching slowed down and maybe even went away for a while or I didn’t notice it. Now in August and the twitching under the skin of my right calf is a lot and the calf feels sore. Went to another Neuro. And did another exam and she doesn’t seem worried. But I’m now going for more mri and emg. But I am a mess. Feel it’s ALS. Any good words or facts from anyone would help. Thx.

hey team, i also really appreciate my neuropace device- it has stopped my seizures almost entirely.

i feel like there have simultaneously been complications that are not being attended to (aka post-op i went to the er for uncontrollable vomitting and limb pain after moving my head in the shower) it was only once, after the surgery.

there is very little out there about how people are feeling, post-op. and so little support around experience— even if we have seizure reduction.

i want to be a voice, and also ask if anyone else may have had anything similar. i am part of the study for generalized epilepsy, implant in thalamus.

i was an ice skater for many years, and have hit my head a lot (?? epilepsy and skating. so it’s weird for anyone to suggest those symptoms coming from moving my head and neck incorrectly is from showering) — the study is kind of making me feel at fault on this one… but anyone w grand mals has ‘moved their neck weird’ and so has a figure skater. so showering is really not the cause, in my mind. i think this surgery did do something in my spine

it’s gotten less frequent and now is not happening… but shouldn’t someone notice that this never happened until surg? and the further i got from it, they reduced and stopped

anyone else anywhere? or just need to vent i guess

My mum is 76F, approximately 80 lbs, with osteoporosis and chronic pain thought to be related to old spinal fractures. She also has lung cancer, but this was treated about 4 years ago; the tumour shrank and has remained unchanged since.

Her main issue is significant weakness and very poor exercise tolerance. She can walk for around 2 minutes before becoming extremely weak and needing to quickly sit or lie down. At times she feels so weak that she seems close to collapsing. Before some episodes, her fingers become very white/cold, and she has learned to sit down when this happens to avoid falling.

She also has:
Chronic nausea and constipation (likely worsened by morphine); takes Laxido for constipation.
Takes low-dose Oramorph for pain and paracetamol.
Several episodes where she remains awake but stares and is completely unresponsive, usually lasting around 1 minute. One episode lasted approximately 5 minutes.
She has had blood pressure, oxygen levels, hydration, bloodwork/electrolytes etc. checked and these have reportedly been normal.

What could cause this combination of severe exertional weakness/near-collapse, fingers turning white beforehand, and episodes of being awake but unresponsive? Could these potentially be related, and what investigations would be reasonable to ask about?

Female in my 30s. Please bear with me, anyone with the time please read.So I have been having extreme sleepiness and low energy since 2023. I also had constipation issues. My doctor ordered a colonoscopy and everything was normal. I feel like my sleepiness has gotten worse. I did see a neurologits/ sleep doctor who thinks it could be narcolepsy without cataplexy but my fear is that will be my diagnosis without ruling anything else out.

•I did have visual changes but they affected both eyes. Random blurriness that comes and goes, saw an eye doctor got prescribed glasses for astigmatism and a Bruder mask. Bruder mask made it worse so I stopped using that. No optic neuritis noted since my last visit. Will be going again soon for my annual. Only other thing noted was lots of floaters in one of my eyes.

•Back pain, spinal xray showed slight curvature of my spine and a transverse process of a vertebrae that is rubbing against my sacrum on the side I had pain. Only issue is the pain is also bad when working out that side leg starts shaking and feels super weak. Thought it could of been a pulled muscle, let it rest a while, went to a chiropractor and now they want to do PT.

•I did have the zap sign in my early 20s when bending my neck but I had also had soreness around my cervical spine/muscles at that time and chalked it up to sleeping weird. This only lasted about 1 week and never came back and resolved after my neck pain went away. Is that sign always permanent? Or did it go away for some of you too?

•I do sometimes get numbness in my legs and hands but I chalk that up to how I'm sitting. I play alot of video games lol

•I had numbness on one side of my face, mainly around the cheek and chin that lasted about 2 days and never came back. Again chalked it up to sleeping funny. (This was more recent)

•I had 1 instance where I went out drinking in my early 20s and came home and woke up in the middle of the night to my whole left side of my body having that pins and needles feeling and it hurt bad. Thought I was having a stroke but was too tired and drunk to get myself to the ER at that time. It resolved in the morning tho.

•I do have periods where I slur my words when I talk but again I'm so tired that I chalk it up to that.

•I have had migraines with aurora but its super rare. I mainly get tension headaches and am having more recently but chalked it up to the antidepressant I am on.

•vivid dreams - chalking that up to meds. I have also had nightmares since I was younger and this more correlates with narcolepsy but I also understand this can sometimes be a symptom for some with ms.

•my arms go numb if I hold them up for too long.

•my body feels stiffer than normal, very hard to stretch and if I stretch I will sometimes get those charlie horses.

•I was diagnosed with OCD and it has been getting worse hence why I started medication now.

•heat and cold intolerance. Was mainly cold intolerance when I was younger but recently was having full on hot flashes where my face would get super red. I chalked this up to having a possible thyroid issue. Thyroid labs were fine expect high tpo which i have brought back down to normal levels by limiting gluten.

•I do take my blood pressure and it changes all the time. It was high for a good month and now has been on the normal low end. Every time I take mine it shows that little heart symbol but I know that can be sensitive to movement.

•for a good month it felt like my legs were so heavy but I was working out a lot but walking just immediately made my hamstrings so stiff that my legs felt like they were in glue or something

•sudden onset of rosacea

•brain fog, sometimes I have hard time even finding words. Notice this more at night time but does happen during the day.

•random itchiness that happens all over my body that feels like tiny bugs everywhere. This usually only lasts a couple hours and then leaves and comes back.

• I also get muscle twitches a lot. Mainly my eyes and legs. But occasionally my upper arm and thumb too.

• my eye lids look like im on drugs.. this is also a symptom of narcolepsy so not sure lol

•I did have a couple years where I had intense painful orgasms. Felt like my whole pelvis and back was cramping. This is now gone. No STDs normal pap ultrasound showed no cysts. I had bad period cramps when I was 18 and they put my on the BC pill so I dont get my period anymore.

• resting tremor in my hands sometimes worse sometimes not as bad

I feel like these symptoms come and go in waves but the tiredness has been so bad and constant as of late. It is 1000% worse if I get sick. I get home from work and immediately run to my bed and take a 5 hour nap. Wake up eat and go back to bed.

I did have an mri in 2023 through prenuvo but its a limited study and does not use contrast. They didn't report any lesions but idk if i need a specific type of mri.

My pcp is great I do have a sleep study coming up. I just dont want to be diagnosed with narcolepsy if it is something else. Can anyone please weigh in I know this was super long but its much appreciated.

Hello Reddit fam - posting this for those that have questions about essential tremors and symptoms. A lot of people come in here asking about relatable symptoms. I am not a doctor and not promoting diagnosis. I am promoting relatability and we are all in this together.

(33 M) I’ve had ET for 10+ years, every movement on the body. I’ve seen a neurologist (2021) and movement disorder specialist MDS (2026). I’ve had multiple test ran and don’t present as Parkinson’s, Parkinsonism, Dystonia, Multiple Sclerosis, or any other neurological disorder. However, I’ve had multiple symptoms that aren’t your standard ET tremors, despite being diagnosed with ET. Every case is different. Ask me anything!!

I’ve been having sciatica type symptoms back pain shocks zaps in my back and legs for the past 3 months after carrying a hefty package up a couple flights of stairs been in pt treating it like a disc bulge but my mri results came back perfect

Clinical indication: Lower back pain after injury.
Technique: Sagittal T1, sagittal T2, sagittal
STIR, axial T1, and axial T2 weighted MR sequences of the
lumbar spine were acquired. Intravenous contrast was not administered.
Comparison: None.
Findings:
Vertebral bodies: No compression fracture.
No osseus expansion.
Alignment: Mild straightening of the lumbar lordosis. No significant scoliosis.No spondylolisthesis.
Bone marrow signal: Unremarkable for age.
Intervertebral discs/endplates: Preserved height and signal.Endplates are intact.
Spinal canal contents: Conus terminates at L1 and is normal in signal. No epidural mass or fluid collection.
Individual evaluation of the disc spaces demonstrates the following:
L1-2: Unremarkable.
L2-3: Unremarkable.
L3-4: Unremarkable.
L4-5: Unremarkable.
L5-S1: Unremarkable.
Paraspinal soft tissues: Unremarkable

Hi. I think i have this condition but no doctor seems to want to help. I started feeling weakness in my feet August 4th. Then it progressed to one leg. This past Sunday it turned into weakness in both legs and now it's also in my arms. I can still walk but it's difficult. I also have very little feeling in my groin area. Normally when I have to pee, the urge is super strong. Now it's barely there. I've lost all sense of touch. I bite and scratch myself and can't feel it.

I can't feel the bottom of my feet. My boyfriend touched my shoulder and it feels numb. I had a really bad case of the flu about 3 weeks before this started. No pain. I've been to the ER twice and they would only do an mri of my lower back and blood work. Nothing showed up. I read that a spinal tap is needed. How can I get a doctor to order this. My neurologist said he doesn't know what it could be and wants me to go to a research hospital. I called the research hospital he recommended and they don't have an opening until late October. I went to catch this and start some sort of treatment before it gets worse. Right now I can walk but it's difficult. Any advice would be appreciated.

hi i am a 19 year old female who is very healthy and active. about 5 days ago i noticed a tremor in my left hand and at first brushed it off as stress. i have more recently had increased anxiety and had a terrible 3 day panic attack in june and honestly haven’t been the same since. i have had instances of brain fog but more recently it has gotten worse along with the tremor. the tremor comes and goes but has gotten worse and i even have a slight one in my right hand too. it is affecting my motor functions. my legs have also started tingling for a couple days. i went to my dr abt this and she immediately leaned toward my anxiety and prescribed me sertraline and told me to see her in a month. i feel lost. nothing is getting better and ive never felt this unmotivated. i feel like i can’t even do anything with the tremors. but i dont experience any muscle weakness and can still walk fine so i dont know if this could possibly be ms or fnd. i rlly need advice. i also am supposed to move back into college this weekend and im just so scared to go back and have something go totally wrong. i just feel like nobody believes me bc i know its not all in my head.

I’m a 17 year old male. I’m Turkish and preparing for the upcoming university exam in 2027. As far as I can notice my hands are started shaking when Im studying 1 week ago. Now my hands are way more shaky. It’s not messing with my motor-controls and I can’t find out why is this happening. I don’t use any medicines nor drink coffee daily. My blood test results were near perfect and I don’t feel stress in general. I’m planning to see a doctor but still wanted to ask reddit for some ideas. It started bothering me not too much but still. And also I can’t be sure of anything but the shaking/trembling is uncontrollable and just out of curiosity my hands shaking can achieve a 6 cps per second when I tried it on my tablet holding my hand in a position when it shakes mu finger touched the screen.

Hey guys , this is my 1st post ever and I hope i would get some answers .A year ago , I began having cramps and fasciculations in my feet and then they got all over my body . I would wake up in the morning with sore feet .As time went by I began to have mild swallowing issues so i decided to see a Neuro ...He seemed a bit concerned , performed an emg on both hands and feet .The emg showed some weakness ( moderate ) ...after a month i began to replace the R sound with the L sound whenever i speak ( sometimes the other way around ) then my voice started to get a little hoarse ( now it is very hoarse ) ....I saw an Ent like 2 weeks ago and he said that i might have silent reflux , he prescribed some PPi and things didn't work .....honestly i don't think the new slurring and hoarseness are pure coincidence . I am thinking of ALs right now , but i am still 34 years old ....what are the odds ??

Just got diagnosed last night, and now I feel like this is going to be my life until I die. The only “treatment” is CBT does this shit actually work or am I going to have to cancel my life and stay in bed to avoid chain seizures and the ER? I’m already canceling my upcoming plans because even a child’s birthday party sent me to the ER just from sitting there on my phone and walking hills